Meb11
New member
- Joined
- Jul 15, 2018
- Messages
- 3
- Reason
- CALS
- Country
- CA
- State
- Ontario
- City
- Brockville
Hello all.thanx for accepting me. This is a long sorted story. My husband was diagnosed over 7 years ago,in the meantime he was diagnosed with hashimotos disease as well,although it was neglected for over 20 years.
He started out with a sore shoulder on his right,then in mobility. Went to a neuro was diagnosed with ALS. Gave him 2 years.
Now it is 7 years later,saw another neurologist,was told he could grow out of it?? He can barely walk and has no mobility on his right side. What the question I have is this since he has been labeled with ALS,no one will look at his other symptoms..accuse smell,random rashes,loss of vision at times,severe pain,sweats nausea all of which we are told is not related..any ideas on how to get someone to listen?
I am so stressed out,I go to work and then look after him,I feel terrible but I need a much needed break
He started out with a sore shoulder on his right,then in mobility. Went to a neuro was diagnosed with ALS. Gave him 2 years.
Now it is 7 years later,saw another neurologist,was told he could grow out of it?? He can barely walk and has no mobility on his right side. What the question I have is this since he has been labeled with ALS,no one will look at his other symptoms..accuse smell,random rashes,loss of vision at times,severe pain,sweats nausea all of which we are told is not related..any ideas on how to get someone to listen?
I am so stressed out,I go to work and then look after him,I feel terrible but I need a much needed break