Valya
Distinguished member
- Joined
- Sep 28, 2008
- Messages
- 127
- Reason
- Other
- Country
- US
- State
- TX
- City
- Austin
I’ve finally accepted that as parents to two children with different, life threatening illnesses, my husband and I are in an undesirable, yet unique position. The emotional shock, anger and denial over Johnny’s ALS diagnosis at the tender age of 18 remains (probably forever) but has evolved to ‘What can I do?’
Well, I guess I’ll just organize something...
I have reserved an area of our local park October 24th, 2009for a combination ALS/Diabetes Run/Walk. I’ve organized countless large events but never one this large and so deeply personal to our family. To be perfectly honest, I have no idea really how to do this. I’ve been accumulating information off the internet and have observed several similar events recently. If anyone has knowledge of this type of event or where I can find information, please let me know. I'll post this also on ALSmatter. org
Thanks!
Well, I guess I’ll just organize something...
I have reserved an area of our local park October 24th, 2009for a combination ALS/Diabetes Run/Walk. I’ve organized countless large events but never one this large and so deeply personal to our family. To be perfectly honest, I have no idea really how to do this. I’ve been accumulating information off the internet and have observed several similar events recently. If anyone has knowledge of this type of event or where I can find information, please let me know. I'll post this also on ALSmatter. org
Thanks!