Tlo57
Active member
- Joined
- Sep 16, 2017
- Messages
- 46
- Reason
- Lost a loved one
- Diagnosis
- 09/2017
- Country
- US
- State
- FL
- City
- Winter haven
My brothers neurologist confirmed Duke University's ALS dx after 2nd battery of tests.
His doctor completed the ALS questionnaire for the VA. He then submitted it to his PVA Rep who informed him today to expect his 1st check in November! They're going to schedule an appt w/ a doc at the VA in order to determine his eligibility for special compensation.
I need to say thank you from the bottom of my heart to all of you Vets who gave us guidance and support throughout this process. Thanks to civilians too!
He was so relieved to get that news today. Had it not been for this forum and it's members, we would not have known that it is a service connected disease.
I got to see him for the 1st time since his dx. I was shook up by the drastic physical changes in him and feel really powerless in that I can't fix it. He's dealing with it stoically.
It was incredibly rough for him working bell to bell in his condition, so the VA compensation is a huge relief.
Immediately after he receives his 1st check, I'll be filing a claim for his SSD.
He and I reviewed his EMG test results, but we're not very savvy in this area. He asked if I could post them on this forum with his personal info. blacked out in hopes of getting help with translation. Another member (awesome friend) mentioned that there are several ppl here that might be willing to help. Can anyone advise in this area before I make a move or post?
His doctor hasn't offered him any explanation or details. He said he'd see him in 3 months. I told him that we should consider finding another ALS doc in his area. He was receptive to that idea.
Hopefully when he sees the VA doctor for the SC appointment, he can answer our questions about medication, progression etc.
Again, can anyone help - translate with EMG results?
Thank you
Tina
His doctor completed the ALS questionnaire for the VA. He then submitted it to his PVA Rep who informed him today to expect his 1st check in November! They're going to schedule an appt w/ a doc at the VA in order to determine his eligibility for special compensation.
I need to say thank you from the bottom of my heart to all of you Vets who gave us guidance and support throughout this process. Thanks to civilians too!
He was so relieved to get that news today. Had it not been for this forum and it's members, we would not have known that it is a service connected disease.
I got to see him for the 1st time since his dx. I was shook up by the drastic physical changes in him and feel really powerless in that I can't fix it. He's dealing with it stoically.
It was incredibly rough for him working bell to bell in his condition, so the VA compensation is a huge relief.
Immediately after he receives his 1st check, I'll be filing a claim for his SSD.
He and I reviewed his EMG test results, but we're not very savvy in this area. He asked if I could post them on this forum with his personal info. blacked out in hopes of getting help with translation. Another member (awesome friend) mentioned that there are several ppl here that might be willing to help. Can anyone advise in this area before I make a move or post?
His doctor hasn't offered him any explanation or details. He said he'd see him in 3 months. I told him that we should consider finding another ALS doc in his area. He was receptive to that idea.
Hopefully when he sees the VA doctor for the SC appointment, he can answer our questions about medication, progression etc.
Again, can anyone help - translate with EMG results?
Thank you
Tina