Good morning all. I had my EMG with Dr. Johnson at Ochsner. She is apparently the co-director of the ALS clinic there so sees/manages it quite frequently.
I do not have the official results of her study yet, as they haven’t been uploaded to the portal. She did both legs, my left arm, my tongue, my left trap, and my left lat (I think). My NCS was completely normal this time, as I was “much too cold the first time”. She did not see ANY of the polyphasic potentials seen by the first EMG doc. She saw the same acute denervation in my right lower leg, and everything else was a “beautiful study”. She said that this abnormality was not indicative of an MND. She also did not appreciate the muscle wasting that the first doc did ( I am VERY thin, so maybe that’s why…5’8” and tipping the scales at 110). The widespread fasciculations I am feeling are in her words, “just benign.”
She wants me to return for a full neuromuscular exam because she does not have an explanation for the weakness/fatigue/cramping in my face/jaw and perceived speech issues (lisping and difficulty forming words) or the weakness in my hand. I have had some periods where I fear bulbar onset as I know this does not always show on EMG…but this is irrational, right? I hope? I didn’t ask her at the time, but I will at my appointment in 2 weeks.
When I get the EMG report and the follow up clinical exam I will post, if that is alright.