etikhomolov
New member
- Joined
- Mar 10, 2021
- Messages
- 1
- Reason
- PALS
- Diagnosis
- 07/2017
- Country
- CA
- State
- BC
- City
- Richmond
People who are not familiar with the details of ALS view a person with ALS as doomed but who can still fill his life (with help from Health Care System) with normal human activities including working on the computer, watching TV, and participating in forums and groups interesting to him. It is true at the early stages of ALS. The majority of ALS patients die because of various forms of respiratory failure not reaching the later stage of ALS. But if they reach my current stage, they enter a completely new world. Now, when almost all physical capabilities of the body are gone they find that Health Care System is not capable of properly supporting such seriously ill people. I describe in my novella how the world looks in the eyes of persons with ALS at the later stage of the disease, including brutally frank discussions about problems (and some solutions). Novella is published on the following free web site:
Listen, Mark is Calling from the Black Hole
Please, have a look. I will be happy to hear your comments and discussions.
Listen, Mark is Calling from the Black Hole
Please, have a look. I will be happy to hear your comments and discussions.