ALS and Herpes

[Cari]

Hello,

I was reading about an association with ALS and herpes virus. Anyone else have any comments about this? Thanks cr

 

[Al]

Hi Cari. I usually send new members to the search feature saying most topics have been covered. While some people have questioned the relation of ALS to a virus, this one has not been mentioned as far as I recall. I'd bet that it was a pretty far stretch to link it to that virus. Could you give us a link to the article? I'd be interested in knowing how many people they've found the pattern in.
AL.

 

[sharona]

Hi
I just read the post about ALS/HERPES. I know they haven't proved this but my husband had the shingles before he started getting sick(docs still say MND no positive diagnosed for anything yet & it's been since 04) Slow progression thank God. You can only get shingles if you had chickenpox & that is a form of herpes. Someday hopefully they will have tests for all these rare diseases.God Bless.
Sharon

 

[sharonca]

Cari - I was wondering the same thing the other day. Kind of how nice it would be to have a National Registry to connect the dots. How may PALS also have a form of herpes or have ever had Shingles? I am a PALS wth herpes and have had Shingles. Couldn't there someplace - a site - where PALS could click off EVERYTHING that applies to them. Seems like if we/they can make an international spreadsheet for Lithium then we could have an international spreadhseet for "dots".

Sharonca

 

[LisaM]

When my dad started having symptoms of ALS he tested positive for syphilis in some tests. They traced it back to a blood transfusion he had for a bypass surgery and the spinal tap they did determined that it had not spread into his spinal fluid so gave him some vaccination and left it alone. I had done some reading at the time and saw that untreated syphilis is associated with movement disorder (nothing about ALS specifically that I can remember).

 

[olly]

trauma/surgery

also just another thought, what about trauma/surgery.iv'e heard alot of people mention they have had this before they got ill. i had major stomach surgery 10mths before my symptoms started.

 

[Cari]

ALS Herpes connection

Hello Everyone, Thank you for your quick responses. I will do some research on this. One of my doctors feels its worth trying the drug Acyclovir but I am working so hard to detoxify and take care of my body that I am very wary of taking anything that has side effects. My progression with PBP has been slow and I feel its because of all the things that I am doing to stay healthy. Best to all of you, Cari