Replying to various questions-
Symptoms started sometime in 2003 with fasciculations, then weakness in right hand.
My "secret" is probably that I just have something of a slow case. I just learned I have ALS two months ago, up until then I had horrible eating habits and drank lots of aspartame-spiked drinks. I've made major changes since then, who knows really if they are doing any good. Here's what I'm doing-
Diet- no soft drinks; trying to eat as organically as possible.
Rilutek, 50 mg. twice daily.
Physiotherapy- leg and upper body strengthening exercises (still lots of muscles there), range of motion in my hands.
Supplements:
EGCG Green Tea Extract- this has moved to the top of my list. ALSTDF is so intrigued they are going to study it: http://www.als.net/forum/topic.asp?TOPIC_ID=550
I'm increasing from 600 to 1200 mg
COQ10- increasing to 1000 mg
R-ALA- 600 mg
Acetyl-l-carnatine- 3 grams
Creatine- 4 grams
Milk Thistle- 900 mg
OPC- 200 mg
zinc- 30 mg
b-100- 2 time release pills
c- 2 time release capsules
3-6-9 omega fatty acids- 6 capsules
centrophenoxine- 500 mg
methyl b-12 sublingual- 25 mg
These are daily amounts taken in divided doses.
Clay foot baths for detox once a week.
I take long walks daily with my dog and go dancing twice a week. I try to maintain a positive attitude and not think about that 3-5 year number. If any of this is helping I have no idea.
Symptoms started sometime in 2003 with fasciculations, then weakness in right hand.
My "secret" is probably that I just have something of a slow case. I just learned I have ALS two months ago, up until then I had horrible eating habits and drank lots of aspartame-spiked drinks. I've made major changes since then, who knows really if they are doing any good. Here's what I'm doing-
Diet- no soft drinks; trying to eat as organically as possible.
Rilutek, 50 mg. twice daily.
Physiotherapy- leg and upper body strengthening exercises (still lots of muscles there), range of motion in my hands.
Supplements:
EGCG Green Tea Extract- this has moved to the top of my list. ALSTDF is so intrigued they are going to study it: http://www.als.net/forum/topic.asp?TOPIC_ID=550
I'm increasing from 600 to 1200 mg
COQ10- increasing to 1000 mg
R-ALA- 600 mg
Acetyl-l-carnatine- 3 grams
Creatine- 4 grams
Milk Thistle- 900 mg
OPC- 200 mg
zinc- 30 mg
b-100- 2 time release pills
c- 2 time release capsules
3-6-9 omega fatty acids- 6 capsules
centrophenoxine- 500 mg
methyl b-12 sublingual- 25 mg
These are daily amounts taken in divided doses.
Clay foot baths for detox once a week.
I take long walks daily with my dog and go dancing twice a week. I try to maintain a positive attitude and not think about that 3-5 year number. If any of this is helping I have no idea.
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