Almost Paralyzed....Choking

[Houston84]

Hi guys!

36 year old male. Starting 2 months ago I began having numbness and tingling and shooting pains. It has since progressed to constant fully body fasciculations, spasms, and I can barely walk without my walker.

My throat is cramping along with my jaw and it is hurting terribly. Yesterday I choked on food several times and had several incidences of nasal regurgitation. I have lots of numbness and tingling and the neuropathic paib is controlled with gabapentin. Floaters in both eyes and pain behind my eyes.

2 weeks ago I was tested for MS at univ hospital. Brain, orbitals, cervical, thoracic fine but found likelt optic neuritis. I DO NOT habe MS or NMO though. Not a single lesion. And I was seen by an MS specialist.

CRP was normal. Hyperreflexia. The6 also did a CTA brain/neck and was nornal.

I am now chewing on my tongue. I walk like my brother with severe cerebral palsy only much more shaky. I was jogging 3 months ago.

I am afraid to fsll asleep cuz I am so scared when I wake up. My eyes barely open and I have trigger finger. I'm so scared.

Thanks!

My left side is so hyperreflexive that I can illicit a funny bone reaction merely by setting my left elbow on my left kneem. Both react.

My symptoms honestly seem more like GBS/CIPD but it is unlikely due to the hyperreflexia.

Neuro phone consult(stupid ad that sounds) for first visit on Wed. I want to to to er so bad but they won't do anything.

I can hardly urinate. Multiple male utis/kidney infectionds.

 

[lgelb]

It sounds like you have a lot going on, so you might start a symptom diary to share with the neuro on Wed. about the more persistent, ongoing issues that keep you from normal activities, make sure they are clear on your gabapentin dosage, etc. If you need better treatment for the urinary issues, I would contact your PCP.

The good news -- you are not presenting what sounds like an ALS story, and an MS specialist would have been in a position to articulate any such concerns.

 

[Houston84]

Thank you for the feedback and I hope you're right. It's concerning though when I wake up like this. It took me 90 minutes to get myself up my body is so incredibly tight. Beyond description. My hands are in claws, right inded finger stuck, and took 3 minutes to open my eyes. And having to work harder at breathing it feels.

Does this seem too fast to be ALS? Thank you so much for your advice and I am making a comprehensive list for my neuro appointment this morning.

 

[Bestfriends14]

Your symptoms are not ALS at all. Not a tiny bit, so fast or slow would be irrelevant. I've never head of an ailment with the symptoms you describe, so following up with your doc would be the best course of action, which you are. The wonderful news is that you don't need to be on an ALS forum. Yay!

Please let us know how your neuro appointment goes.

Good luck to you.

 

[Houston84]

Thanks for the replies. I have an in person visit with EMG/NCV test next Tuesday. I can no longer open bottles with my left hand. I can't hold myself up against the sink to urinate in it any longer as my legs are like jello. My jaw is having major issues along with every other muscle in my body including my throat.

Its only been 6 weeks since I first dropped an item or tripped. Now I drop everything I touch and my neck is so weak.

With my clean MRIs, lack of inflammation, and hyperreflexia as was noticed by neuro in hospital my neuro seemed very worried about ALS.

Thanks so much for the support!

Prescribed me baclofen for the cramps which is helping tremendously.

 

[Bestfriends14]

The speed and type of symptoms do not correlate with the usual pattern of ALS, especially with the jaw aches and choking on solid food. Choking on thin liquids typically is the first sign of anything bulbar, along with slurred speech that others notice first.

Let us know how the tests go. Glad you can get in so quickly.

 

[Houston84]

Hi guys! Looks like I don't have ALS. I've attached my EMGs. I took baclofen 6 hiurs before it but she said it shouldn't matter? She still is sending me to a muscular specialist due to my clincal weakness and I'll also be seeing a rheumatologist. Was hoping for some answers on the RNS as I hoped it could be Myasthenia Gravis but that looks unlikely now too. Very confused

Thanks a lot guys!

 

[lgelb]

These results are all good news and confirmation that you don't need to be here. I'm sure the new focus will be on more systemic disorders, most of which are treatable.