Al, did cut me a break.

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SMillheiser

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Al,

Could you cut me some slack and give me access to Member's List and email. I am only trying to help those that need it. I cannot respond to their needs if I can't correspond with them.

Do you think it is in anyone's best interests for PALS in need to be denied help like this? Please reconsider.

STU MILLHEISER
THE ALS GUARDIAN ANGELS FOUNDATION
 
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CindyM

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Hi Stu- this is not AL's decision, I believe. If you were around in the days when this site was hacked by porn and other nasty stuff you'd know why we are happy with the new software. Your membership privileges will kick in soon. Regards, Cindy
 

Al

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Hi Stu. Did you get the Private message I sent you. Haven't got a reply about the donation you sent here. I'm curious why you need access to our member list? Post a message with your email and those that are interested can contact you. That way people won't get unwanted, unsolicited emails.There is no way for you to get access to the email addresses here anyway. You would have to private message everyone and that is not even a good idea because a lot of them have passed on. Not trying to be difficult but that's the way the software is set up.
 
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hopingforthebest

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thanks Al

Dear Al

Thank you for not giving email addresses to this gentleman.


I believe he is the real thing but agree with the confidentiality issue. Believe you me, if People from this site need his help, he will get contacted. I did notice that he even posted for everyone his telephone number.

Once again, I appreciate no one getting my info from this site; but applaud Stu for his generous, caring spirit of giving! God will bless him for it.

Thanks Al.

Patty:-D
 

Al

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I have been told tonight that he has helped out another of our members. People are making contact through his phone and email. Seems to be working OK.
AL.
 

sharonca

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Hopefully the web site for ALS Guardian Angel Foundation will be up and running soon. Does anyone have a problem with the web site being given out when it is available? Just asking. We know for a fact that this is not a scam - wish there were more generous people like Stu with no agenda other than helping PALS.

Sharonca
 

Al

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We'lll put the site up because it helps ALS patients, caregivers and is relevant to this site. It won't be advertising false hope or cures. It won't be making wild claims for treatments and supplements. I'm hoping in time it will work itself into a self supporting foundation.
AL.
 

SMillheiser

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I don't want anyones email address, just a way to send an email

Al,

I never got your PM.

I thought that members had a way to email others. I don't even know what the members list is...but I thought it provided a means to email other mrmbers. I do not want ANYONE'S email address. I justwant to send an email thru the site while maintaining the recipients privacy. Don't most forums do this?

Some PALS/CALS are too embarrassed to ask for help. Some stories touch me, and I'd like to proactively reach out. Also ,I do not think it is appropriate to discuss financial issues in full view of other members.

In summary, my instincts are to reach out and offer help to those who will not ask for it. It should be done in private for the PALS/CALS sake.

Stu
 

Al

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Hi Stu. When we talked I thought I told you how many posts you needed before you could private message anyone. I'll try to resend the PM I sent you. If I don't get a reply I'll call you.
AL.
 

Farmgal from ND

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Hey Al

Who is this Stu guy and what exactly does he do for people with ALS ?
 

Al

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Can you run through it again Stu?
AL.
 

sharonca

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I think that Stu confused Private Message and E-mail. When a new members comes on they have to have a certain number of posts before they can access private messaging. He didn't have enough.

Sharonca
 

Lorie

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Post Help Offered

I think Stu needs to post about the help he is offering. I hope his intentions are good ones. Post the website name? Those that are interested can check it out.

Lorie
 

MtPockets

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Stu has answered my email and he is working on the web page. Evidentially this is a brand new foundation to help ALS victims and their families. Given some time maybe he will get it all together so we can access the information.

I appreciate anyone who would start such a project. Like most of you I just hope it is for real. We really need something like this to help everyone. I am looking forward to seeing the results of his efforts.
 

CindyM

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Maybe, in his excitement to help, Stu announced his plans before he was able to organize a legal foundation to receive funds, get whatever certification his state or province requires to solicit funds, get his website going, and so on. I know starting a project like this in my State requires a lot of work behind the scenes. Stu, if you are running into a lot of issues like the one I mentioned above, hang in and keep at it!
 
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