Aides for overnight?

[Tomswife]

I have been employing aides for overnight, 10pm to 6am.
Most nights are uneventful. Tom sleeps or rests and has no issues.
Coughing - i have been giving him mucinex and tylenol and that has substantially reduced night coughing. And I now have a suction machine.
Some nights Tom coughs.
Some nights , rarely, he has a BM. If yes, the aide wakes me and we do the hoyer etc together.

I am just trying to figure out if I need the overnight person.
Does anyone else use an overnight aide? If yes, what do they do?
Thanks. Kathy

 

[Tomswife]

Well...last night was Very difficult. PALS uncomfortable all night long. 12am , 130am, 3am, and on. He needs to be moved. Pillows not okay that had been okay. This is typical. And he needs whatever attention and care he needs. I got up each time he called. Aide did not move.

At 4am I told her she could go home if she wanted since she is not helping me. She said. No I will stay till 6am. Before she left she emptied the urinal.

 

[Mary2]

Wow! What nerve! Just incredible....the aide's lack of caring.

 

[Tomswife]

I am using two agencies. Agency2 failed to send consistent and competent helpers for night duty.
I called agency1 and they plan to provide 2 people across the 7 days. Lets hope tonight is better than last night.

 

[Tomswife]

I give up. I give up. Last night aide seemed good. Nice person.
But Tom said she ignored him many times. I cancelled her. And any future night people.
I give up. Will sleep on couch.

 

[Mary2]

I am so sorry. I hope you don't get too tired. My heart is with you that you don't have the help that you want and need.

 

[Tomswife]

So...no overnight aides. Tom sleeps at night. I give him chamomile tea and I think that helps. Last night I slept in our bed for the first time in weeks. I have a baby monitor that will pick up sound or movement. I went down at 2am to make sure the mask is on correctly. But the bipap will beep if there is a leak.
Will try sleeping in bed from now on.
Kathy

 

[lgelb]

Glad you are back in bed, where you should be!