storch
Member
- Joined
- Jun 8, 2015
- Messages
- 15
- Reason
- Learn about ALS
- Country
- US
- State
- utah
- City
- salt lake city
I will start by saying I've had bad anxiety over the past two years. Without going into too much detail as I know it's not important, my brother died, my parents are alchoholics, I got chronic tinnitus from a concert, I woke up with extreme derealization and panic / anxiety and my life was never the same. That being said, I wake up every morning with extreme pain and no doctor has been able to tell me why.
Unrelated to that, and the reason I'm here. My Vitamin D levels are low. I recently woke up with an intense fasciculation in my rib that stayed for 2 days, then went ALL over my body. My legs & arms (both sides) feel extremely weak and stiff, and when I exert myself too much (go on a walk through the mall) they will burn that night. When going up a flight of stairs, it feels like I already went on a hike and my muscles are fatigued and very weak. I can't do as much as carry 10 pounds for one minute without my arms feeling weak. I am 24 years old.
I am slurring my speech. When not thinking about it, I'll be talking to someone and stumble with my words. My jaw and tongue feel heavy and almost like I sucked on ice and tried to talk. This has been progressing lately.
I am so frustrated and reaching out for help, because the neurologist I saw wouldn't even preform any test, stating "you are too young for als / ms is unlikely, have you thought about narcolepsy?". I waited four MONTHS for this guy, and now I have to wait another 3 while my symptoms seem like they are getting worse before I can get into someone else.
-Bodywide fasciculations
-Weakness in arms, and especially in legs. Feeling like I have to try extra hard not to stumble.
- jaw / tongue stiffness and weakness. Messing words up frequently and feeling like talking is difficult
-stiffness in limbs, as if I have to drag my feet to get anywhere.
I am terrified. I am already borderline suicidal because of the previous issues, and I am not strong enough like anyone here to live with an ALS diagnosis. Doctors have failed me again and again, and now I'm waiting anxiously and while I feel like ALS is progressing to find another one. I know that ALS is failing, not feeling, but wouldn't it be progressive? Wouldn't I feel weak and stiff before actually tripping? And the speech issues, aren't they right on with ALS?
Please, any advice from someone more knowledgeable than me would be helpful. Doctors don't seem to care and I feel like if there is a god, he wants me dead.
Unrelated to that, and the reason I'm here. My Vitamin D levels are low. I recently woke up with an intense fasciculation in my rib that stayed for 2 days, then went ALL over my body. My legs & arms (both sides) feel extremely weak and stiff, and when I exert myself too much (go on a walk through the mall) they will burn that night. When going up a flight of stairs, it feels like I already went on a hike and my muscles are fatigued and very weak. I can't do as much as carry 10 pounds for one minute without my arms feeling weak. I am 24 years old.
I am slurring my speech. When not thinking about it, I'll be talking to someone and stumble with my words. My jaw and tongue feel heavy and almost like I sucked on ice and tried to talk. This has been progressing lately.
I am so frustrated and reaching out for help, because the neurologist I saw wouldn't even preform any test, stating "you are too young for als / ms is unlikely, have you thought about narcolepsy?". I waited four MONTHS for this guy, and now I have to wait another 3 while my symptoms seem like they are getting worse before I can get into someone else.
-Bodywide fasciculations
-Weakness in arms, and especially in legs. Feeling like I have to try extra hard not to stumble.
- jaw / tongue stiffness and weakness. Messing words up frequently and feeling like talking is difficult
-stiffness in limbs, as if I have to drag my feet to get anywhere.
I am terrified. I am already borderline suicidal because of the previous issues, and I am not strong enough like anyone here to live with an ALS diagnosis. Doctors have failed me again and again, and now I'm waiting anxiously and while I feel like ALS is progressing to find another one. I know that ALS is failing, not feeling, but wouldn't it be progressive? Wouldn't I feel weak and stiff before actually tripping? And the speech issues, aren't they right on with ALS?
Please, any advice from someone more knowledgeable than me would be helpful. Doctors don't seem to care and I feel like if there is a god, he wants me dead.