Mike12345
Active member
- Joined
- Feb 28, 2020
- Messages
- 37
- Reason
- Learn about ALS
- Diagnosis
- 00/0000
- Country
- AU
- State
- VI
- City
- Mel
Hi all,
I will start by saying that people replying and helping stressed posters like myself are truly amazing. Truely great people out there.
I'm 32 firefighter and have never been more scared.
I Began having general fatigue, exercise intolorence and balance issues (all which still exist) in September after a month away in Europe. A couple months later (December) I started having fasiculations. They commenced in the sole of my left foot as a buzzing. Then spread to both calves, quads, arms, hands, abdominals, and tongue.
Neurologist acknowledge fasiculations and had EMG mid January. EMG found fasiculations in many muscles, as well as "chronic neurogenic changes" in both thenar muscles under my thumb (worse on left). That being said the neuro didn't think they were significant enough, and I was given a diagnosis of likely BFS.
I got on with my life, however over the proceeding month I have noticed mass muscle atrophy. The atrophy is widespread but mostly in the sole of foot, calfes, hand muscle,.quads and face (more pronounced on left side). Basically everywhere that I'm twitching there is muscle wastage. Worse in the areas that have twitches longest. And it is significant. I workout alot and know my body well.
I returned to the nuerologist last week who agreed that I have had large muscle atrophy and has booked me in for another EMG test. (It's been 60 days since first one). Not sure if he is trying to keep me calm, but said he doesn't think it's ALS as I havent presented with clinical weakness yet, and atrophy shouldn't be first. He is thinking something else, but couldn't tell me what.
That being said I have read that it can happen in this order. Also I'm worried my EMG did have some "chronic neorgenic changes". That with the widespread atrophy (worse on left side), hand, face, legs etc. I know the EMG was mostly clear, but my body has wasted alot in the 60 days since.
Just seeking an opinion as it's hard waiting without any knowledge of what's to come.
Would've the first EMG picked up the atrophy first ? Are my symptoms presenting in an abnormal manner? Could it be ALS?
Thanks in advance.
I will start by saying that people replying and helping stressed posters like myself are truly amazing. Truely great people out there.
I'm 32 firefighter and have never been more scared.
I Began having general fatigue, exercise intolorence and balance issues (all which still exist) in September after a month away in Europe. A couple months later (December) I started having fasiculations. They commenced in the sole of my left foot as a buzzing. Then spread to both calves, quads, arms, hands, abdominals, and tongue.
Neurologist acknowledge fasiculations and had EMG mid January. EMG found fasiculations in many muscles, as well as "chronic neurogenic changes" in both thenar muscles under my thumb (worse on left). That being said the neuro didn't think they were significant enough, and I was given a diagnosis of likely BFS.
I got on with my life, however over the proceeding month I have noticed mass muscle atrophy. The atrophy is widespread but mostly in the sole of foot, calfes, hand muscle,.quads and face (more pronounced on left side). Basically everywhere that I'm twitching there is muscle wastage. Worse in the areas that have twitches longest. And it is significant. I workout alot and know my body well.
I returned to the nuerologist last week who agreed that I have had large muscle atrophy and has booked me in for another EMG test. (It's been 60 days since first one). Not sure if he is trying to keep me calm, but said he doesn't think it's ALS as I havent presented with clinical weakness yet, and atrophy shouldn't be first. He is thinking something else, but couldn't tell me what.
That being said I have read that it can happen in this order. Also I'm worried my EMG did have some "chronic neorgenic changes". That with the widespread atrophy (worse on left side), hand, face, legs etc. I know the EMG was mostly clear, but my body has wasted alot in the 60 days since.
Just seeking an opinion as it's hard waiting without any knowledge of what's to come.
Would've the first EMG picked up the atrophy first ? Are my symptoms presenting in an abnormal manner? Could it be ALS?
Thanks in advance.