OHDaughter
New member
- Joined
- Oct 30, 2017
- Messages
- 4
- Reason
- Loved one DX
- Diagnosis
- 10/2017
- Country
- US
- State
- OH
- City
- Athens
Hello. My father was diagnosed w/ALS earlier this month at West Virginia University (WVU). The diagnosis and recommendation to begin Radicava was so swift from WVU that I suggested he get a 2nd opinion. We had the 2nd opinion at the Cleveland Clinic last week, and they want to re-run the EMG and have done some additional blood work, but it seems that ALS will be the diagnosis. (This is still hard to accept as he is mostly asymptomatic. The EMGs done at the local neurologist and at WVU are, however, evidently compelling.)
Assuming the diagnosis is confirmed by the Cleveland Clinic, we are looking at ALS Clinics for ongoing care. My parents planned on returning to WVU (2 hr drive) but its lack of online presence/information, only having 15 total clinic ALS patients, and their swift diagnosis make me uneasy. We could utilize OhioHealth's ASL Clinic in Westerville, Ohio (also a 2 hr drive). My parents appreciated their Cleveland Clinic experience but it's a 3.5 hr drive and a stressful drive for them due to traffic/size. All 3 of these are on the ALSA.org website with differing classifications. I also just learned that Ohio State University also has an ASL clinic (also a 2 hr drive, it is NOT listed on the ALSA.org website).
Does anyone have any experience with any of these clinics? Do you have any questions you think I should ask the clinics to help guide the selection of a clinic? They will all be a considerable drive and I'd like to get established at a quality place sooner than later.
Thanks so much!
Assuming the diagnosis is confirmed by the Cleveland Clinic, we are looking at ALS Clinics for ongoing care. My parents planned on returning to WVU (2 hr drive) but its lack of online presence/information, only having 15 total clinic ALS patients, and their swift diagnosis make me uneasy. We could utilize OhioHealth's ASL Clinic in Westerville, Ohio (also a 2 hr drive). My parents appreciated their Cleveland Clinic experience but it's a 3.5 hr drive and a stressful drive for them due to traffic/size. All 3 of these are on the ALSA.org website with differing classifications. I also just learned that Ohio State University also has an ASL clinic (also a 2 hr drive, it is NOT listed on the ALSA.org website).
Does anyone have any experience with any of these clinics? Do you have any questions you think I should ask the clinics to help guide the selection of a clinic? They will all be a considerable drive and I'd like to get established at a quality place sooner than later.
Thanks so much!