Mrsford
Member
- Joined
- Sep 29, 2016
- Messages
- 10
- Reason
- Other
- Country
- UK
- State
- Highams park
- City
- London
Haven't posted here for a while. Had repeat EMG nerve conduction as I've felt my symptoms are progressing. Neuro said his exam was normal ( although I'm not sure mute plantur response is)
Nerve conduction shows mild reduction of velocity with normal amplitude ( left ulnar nerve,)
Mild slowing of velocity across left elbow with normal amplitude
EMG findings show mild chronic neurogenic changes in left ulnar innervated muscles, no active denervation seen ( does this mean there was denervation at some point?). It then says no neurogenic or myopathic features are seen. This is confusing at it just said chronic neurogenic change in left ulnar
Scanty polyphasic units seen in right and left TA and right deltoid muscles ( this terrifies me as I've read polyphasic units are seen in MND/ als)
No fasciulation or spontaneous activity recorded
Genioglosuss and thoracic paraspinals muscles normal.
My symptoms are as follows. Around 16 months ago notice weakness in left arm. Had to change carrying baby to right side. Summer 2016 noticed muscle twitches and increased weakness in shoulders and arm ( more so the left than the right)
I'm also noticing a stiff and achy jaw when I eat, aching underneath the tongue, horse voice at times, increased effort to talk
Breathlessness, sometimes at rest and when completely flat in bed, very breathless when walking or doing any kind of activity
Sensory issues stated about a month or two ago and are increasing.tingling in fingers, hands and arms, this is intermittent and seems to related to position like if I raise my arms for too long. Some mild intermittent pins and needles and sometimes numbness in both arms, hands and fingers
I have shooting pains up the back of my neck and head, head aches, very sore and aching neck, back and trapezius muscles.
Weakness, unsteady in the legs ( can still do everything but starting to not be able to
Walk long distance and increasingldifficulty getting up from squatting position. Sometimes I have a strange sensation in TA muscles, not sure if it's weakness or numbness
Twitching everywhere including my eyebrows, cheeks, lips, chin, shoulders, fingers jerking, different areas of hands and feet, basically every limb. It's not constant as in non stop but I'd say I notice twitches almost every hour. They drive me nuts
Strange jerks of leg and trunk when sleeping
I spoke with neuro and he said this is absolutely not als or any other form of MND.
Scared to death. Neuro did not mention any of the abnormal findings on the phone ( haven't seen him face to face and won't until appointment in may)
What scares me is at the end of this report t says if symptoms progress then tests to be repeated in 6 months
The last EMG and nerve conduction I had was in September 2016 and was clean
Given that I feel my symptoms are progressing especially with pain and tingling and increase in the amount of twitches I'm very worried. Has anyone experienced this and gone on to find something other than MND?
Nerve conduction shows mild reduction of velocity with normal amplitude ( left ulnar nerve,)
Mild slowing of velocity across left elbow with normal amplitude
EMG findings show mild chronic neurogenic changes in left ulnar innervated muscles, no active denervation seen ( does this mean there was denervation at some point?). It then says no neurogenic or myopathic features are seen. This is confusing at it just said chronic neurogenic change in left ulnar
Scanty polyphasic units seen in right and left TA and right deltoid muscles ( this terrifies me as I've read polyphasic units are seen in MND/ als)
No fasciulation or spontaneous activity recorded
Genioglosuss and thoracic paraspinals muscles normal.
My symptoms are as follows. Around 16 months ago notice weakness in left arm. Had to change carrying baby to right side. Summer 2016 noticed muscle twitches and increased weakness in shoulders and arm ( more so the left than the right)
I'm also noticing a stiff and achy jaw when I eat, aching underneath the tongue, horse voice at times, increased effort to talk
Breathlessness, sometimes at rest and when completely flat in bed, very breathless when walking or doing any kind of activity
Sensory issues stated about a month or two ago and are increasing.tingling in fingers, hands and arms, this is intermittent and seems to related to position like if I raise my arms for too long. Some mild intermittent pins and needles and sometimes numbness in both arms, hands and fingers
I have shooting pains up the back of my neck and head, head aches, very sore and aching neck, back and trapezius muscles.
Weakness, unsteady in the legs ( can still do everything but starting to not be able to
Walk long distance and increasingldifficulty getting up from squatting position. Sometimes I have a strange sensation in TA muscles, not sure if it's weakness or numbness
Twitching everywhere including my eyebrows, cheeks, lips, chin, shoulders, fingers jerking, different areas of hands and feet, basically every limb. It's not constant as in non stop but I'd say I notice twitches almost every hour. They drive me nuts
Strange jerks of leg and trunk when sleeping
I spoke with neuro and he said this is absolutely not als or any other form of MND.
Scared to death. Neuro did not mention any of the abnormal findings on the phone ( haven't seen him face to face and won't until appointment in may)
What scares me is at the end of this report t says if symptoms progress then tests to be repeated in 6 months
The last EMG and nerve conduction I had was in September 2016 and was clean
Given that I feel my symptoms are progressing especially with pain and tingling and increase in the amount of twitches I'm very worried. Has anyone experienced this and gone on to find something other than MND?