GXTrex
Distinguished member
- Joined
- Dec 2, 2020
- Messages
- 174
- Reason
- Lost a loved one
- Diagnosis
- 12/2020
- Country
- US
- State
- NY
- City
- Long Island
My PALS (my father) is coming over on Saturday and I plan on having the talk with him regarding end of life decisions. His living will states no feeding tube or mechanical ventilation but that document was made before we knew he had ALS.
I have done a lot of research on what the future may hold (PEG/NIV/Trache) but I wanted opinions from everyone here who had these discussions before as a PALS themselves or as a CALS. I do not think he has done much if any research himself as to live in the moment. He does not like talking about the future.
What advice do you have for talking about it? What information was very useful to know? Any regrets? Anything that should be avoided?
I have done a lot of research on what the future may hold (PEG/NIV/Trache) but I wanted opinions from everyone here who had these discussions before as a PALS themselves or as a CALS. I do not think he has done much if any research himself as to live in the moment. He does not like talking about the future.
What advice do you have for talking about it? What information was very useful to know? Any regrets? Anything that should be avoided?