- Jan 11, 2020
- Lost a loved one
Hi everyone. My mom was confirmed C9 fALS and now I'm starting to think about testing. I'm a bit of a hypochondriac so it's very tough not knowing and analyzing every muscle quiver, jerky reflex, and every time food goes down the wrong way. I know that I should consult a genetic counselor first, and that's where my questions start. Is there a best place to find a genetic counselor? Should I go through my insurance? I've heard of people getting privately tested but I haven't heard much info about that. And for people who have been tested, do you have any advice or anything that you would have done differently? Thank you all so much in advance! Any and all information and thoughts are appreciated.