Noey
Active member
- Joined
- Feb 20, 2016
- Messages
- 44
- Reason
- Learn about ALS
- Diagnosis
- 00/0000
- Country
- PH
- State
- PH
- City
- Quezon city
Hello everyone. I never thought I'd be back here, but here I am again. Some might be familiar with me as I was here 5 and a half years ago when I was 23. I came here because I had body wide twitching. To cut the long story short, an initial EMG showed that I had ALS (Denerv, fasci etc). I did a second opinion and another EMG focusing on my left side muscles and an MRI of the spine as well as clinicals, and lo and behold, all were clear except for the absence of bilateral f waves in peroneal nerve to which my neuro indicated could be just something normal. I decided to move on with my life even if the twitching was still there. Some days it was bad, some days I didn't even think I had them. In that 5 years, i could say i didn't feel them. I hiked, trekked, travelled to other countries, commuted to work every single day, attended concerts, etc. with absolutely no problem. Last year, I decided to start doing home workouts due to the quarantine. It was then that I noticed that my right knee popped a lot although without pain. Around 3 months ago, I focused on working out my legs and buttocks. Like what I said, these are home workouts without a trainer looking after me so I can't guarantee my form was right. Please keep in mind that there was still twitching from time to time. I also got a dog and her cage is pretty big. I have to get my right knee into the cage to clean in and it carried all of my weight. fast forward to roughly a month ago, i noticed that my thighs were uneven. My right thigh was thinner than left despite me being right dominant. My right foot is arched more than my left. I also had on and off right knee pain. Around 2 weeks ago, the knee pain was constant and affected my thigh and calf muscles too. I also noticed that I was starting to twitch a lot on my right leg. Now this is where my worry comes to play. Would it be possible that my knee is in pain because my thighs have no more muscle? Could I be manifesting symptoms now? It's been 5 years of doing literally normal stuff and suddenly my leg muscles are uneven, the twitching there is more frequent and there's muscle pain.
If you've made it to the end of this post, thank you for your time. Any inputs are much much appreciated.
If you've made it to the end of this post, thank you for your time. Any inputs are much much appreciated.