From simple procedure to emergency surgery...
Maybe I shouldn't tell you PALS this, but you asked how it went. Checked in Wed. to have tube put in, to go home next day. Very eminent, experienced gastro-entorologist did surgery. Woke up in excruciating pain. Said probably leaked air or something. By Fri. even my nurses were crying. Scan showed air in abdominal cavity. Surgeon call in; emergency 3 a.m. surgery. Air had dried internal organs, causing irritation, abrasions. He plugged leak washed area with somthing called markane. I go to ICU. No place for someone with ALS. No one with me, cannot move any part of my body, can't talk, call button on floor where it had fallen. It was hell.
But I survived. Am back home. Would rather eat any day. Ugliest thing I've ever seen;24" long. Have lost weight & strength I will probably nver regain. My relationship with husband has detiorated, He poured a can of stuff in me, is in there eating food. I"m sorry but after 2 yrs of positive attitude, etc. Little Miss Sun shine is mad as hell. I know I need to get over it, but now I'm required to have sitters & as you know, only us independent types get this mess. I WANT MY LIFE BACK!