Zina Perry
Member
- Joined
- Jan 5, 2008
- Messages
- 29
- Reason
- Loved one DX
- Diagnosis
- 12/2007
- Country
- US
- State
- Texas
- City
- Rusk
Hello All,
Just wondering if everyone attends an ALS clinic? My husband, Mike was diagnosed in Ocotber and we got a second opinion in December and after a muscle biopsy they agreed he had ALS. Do I need to be carrying him to a clinic or continue to use the doctor that confirmed. His onset is respiratory and he has no other symptoms, but must use the bipap about 20 hours a day. His oxygen levels are getting lower and we have it available if needed. The WONDERFUL pulmonolgist that we use told him he was going to sleep and not wake up and that he thought he would die before he lost the use of his limbs. At times, I really don't think he has ALS and then again I know something is seriously wrong. I have read so many posts and have so much compassion for everyone and the trials and tribulations that they face each day. He overcame cancer but I must admit that ALS is a lot worse than that. My prayers are with all of you each day.
God Bless,
Zina Akin Perry
Just wondering if everyone attends an ALS clinic? My husband, Mike was diagnosed in Ocotber and we got a second opinion in December and after a muscle biopsy they agreed he had ALS. Do I need to be carrying him to a clinic or continue to use the doctor that confirmed. His onset is respiratory and he has no other symptoms, but must use the bipap about 20 hours a day. His oxygen levels are getting lower and we have it available if needed. The WONDERFUL pulmonolgist that we use told him he was going to sleep and not wake up and that he thought he would die before he lost the use of his limbs. At times, I really don't think he has ALS and then again I know something is seriously wrong. I have read so many posts and have so much compassion for everyone and the trials and tribulations that they face each day. He overcame cancer but I must admit that ALS is a lot worse than that. My prayers are with all of you each day.
God Bless,
Zina Akin Perry