PrimaVera
New member
- Joined
- Apr 23, 2020
- Messages
- 9
- Reason
- PALS
- Diagnosis
- 03/2020
- Country
- US
- State
- CT
- City
- Shelton
Does anyone have advice on how to adapt to a Trilogy while having severe bulbar nerve symptoms? That means that my lip seal is weak, so my cheeks puff right out and air gets blasted out of my mouth when the Trilogy ramps up the pressure. I use a chin strap and full face mask. I have had the machine about two months now, and previously used a CPAP, so am not struggling with claustrophobia.
Despite several respiratory tech visits to tweak the settings, it still puffs me so full of air during the night (within 2 - 4 hours) that I feel my stomach and intestines will explode. It is VERY uncomfortable and I cannot imagine what is going on...I am not knowingly fighting the Trilogy as I am asleep when this is happening.
I almost feel my machine is possessed because it seems to have a mind of its own. It seems to want to breathe more times per minute, and at higher pressure, than I need at this time. Any advice would be greatly appreciated.
Despite several respiratory tech visits to tweak the settings, it still puffs me so full of air during the night (within 2 - 4 hours) that I feel my stomach and intestines will explode. It is VERY uncomfortable and I cannot imagine what is going on...I am not knowingly fighting the Trilogy as I am asleep when this is happening.
I almost feel my machine is possessed because it seems to have a mind of its own. It seems to want to breathe more times per minute, and at higher pressure, than I need at this time. Any advice would be greatly appreciated.