Mohammad77
Member
- Joined
- Jan 12, 2010
- Messages
- 26
- Reason
- Loved one DX
- Diagnosis
- 01/2009
- Country
- PK
- State
- Capital
- City
- Islamabad
Hi, This is my first post here. I had been viewing this forum for some time now for answers and cure or any type of treatment. I didn’t know what to say or how to comfort as I was needing the comfort my self.
Any way A little history, I am from Pakistan. My father (56) was diagnosed With PBP MND beginning of last year 2008. We tried everything possible there to treat him and he become worse and worse in three months time he started chocking on food, we couldn’t understand what he said, Then we took him to Bangkok for a second opinion in June alas he was diagnosed with the same and the doctors just recommended Rilutek (riluzole) for increase in life span and asked us to prepare for the worst soon around six months or so. As a middle class family from Pakistan affording that medicine is like a whole month’s salary.
So he went back disappointed and I started to look for alternatives, The best I could find was stem cell took 2 months to come to a conclusion that we should go for Xcell in Germany. Cost was so high for us but…I don’t want to go in details point is we didn’t go main reason German embassy rejected my dads visa as god knows that xcell didn’t mention PBP on there website.
Now Till September excessive saliva started to generate and problems started to get worse. So I went for homeopathic medicine. Tried that and no results came from it. Now my father couldn’t swallow at all in October and his conditions where getting worse day by day.
By November he had no movement in his face upper lip shorted, lower lip hanging saliva dripping all over, chin muscles going up towards his left he had a lot of cramps in his neck and didn’t have the power to close this mouth and started to have breathing problems, so I guess you can imagine the picture.
End of November some relative of mine told me there’s a Chinese man in Islamabad doing acupuncture why not try and that hes an authentic acupuncture Doctor and just check it out. So we went to him he saw my father asked him to take out his tongue but my father couldn’t do it didn’t even come to his teeth. So he took his 3 inch needle under my fathers chin for 3 secs my father didn’t feel any pain he took the needle out and then asked my father to stick out his tongue and I couldn’t believe my eyes his tongue came up to his teeth easily. And the Chinese Doc was happy with this he said it is highly possible that my father can be cured and I hope so too.
I asked the doc that how this acupuncture works he told me that it activates the immune system he punctures specific nerves the body system runs to repair it in process repairing the nerves and nervous system. He asked me to stop any medicines hes taking like Rilutek (riluzole) antibiotics etc except for heart and blood pressure meds. He said his nerves system is weak and cant take the meds its just making it worse for him so we have stopped everything as he wants it to naturally heel them.
To date. My father is going to see him 3 times a week for the last 7 weeks, My fathers saliva has become very controlled, his face features are now 80-90% normal his chocking has gone down maybe once in 2 days, but very mild ones, he has stared to swallow better, breathing problems have gone down to 5 mins once in five days, I think he has gained some weight as well. Speech has had little effect I think that’s my fathers fault as he doesn’t do the exercise given by the doc enough, we have to push him a lot to do it,
Best part is he feels better and confident.
This whole thing I wrote is that there is hope and we should try what ever possible means we have there might be something that can work for our loved ones.
Please don’t mind my English I am not so good at it,
I wish for all to get well just be positive, If God closes one door, He also opens hundreds of other doors for us.
Take care all, will keep you updated.
Any way A little history, I am from Pakistan. My father (56) was diagnosed With PBP MND beginning of last year 2008. We tried everything possible there to treat him and he become worse and worse in three months time he started chocking on food, we couldn’t understand what he said, Then we took him to Bangkok for a second opinion in June alas he was diagnosed with the same and the doctors just recommended Rilutek (riluzole) for increase in life span and asked us to prepare for the worst soon around six months or so. As a middle class family from Pakistan affording that medicine is like a whole month’s salary.
So he went back disappointed and I started to look for alternatives, The best I could find was stem cell took 2 months to come to a conclusion that we should go for Xcell in Germany. Cost was so high for us but…I don’t want to go in details point is we didn’t go main reason German embassy rejected my dads visa as god knows that xcell didn’t mention PBP on there website.
Now Till September excessive saliva started to generate and problems started to get worse. So I went for homeopathic medicine. Tried that and no results came from it. Now my father couldn’t swallow at all in October and his conditions where getting worse day by day.
By November he had no movement in his face upper lip shorted, lower lip hanging saliva dripping all over, chin muscles going up towards his left he had a lot of cramps in his neck and didn’t have the power to close this mouth and started to have breathing problems, so I guess you can imagine the picture.
End of November some relative of mine told me there’s a Chinese man in Islamabad doing acupuncture why not try and that hes an authentic acupuncture Doctor and just check it out. So we went to him he saw my father asked him to take out his tongue but my father couldn’t do it didn’t even come to his teeth. So he took his 3 inch needle under my fathers chin for 3 secs my father didn’t feel any pain he took the needle out and then asked my father to stick out his tongue and I couldn’t believe my eyes his tongue came up to his teeth easily. And the Chinese Doc was happy with this he said it is highly possible that my father can be cured and I hope so too.
I asked the doc that how this acupuncture works he told me that it activates the immune system he punctures specific nerves the body system runs to repair it in process repairing the nerves and nervous system. He asked me to stop any medicines hes taking like Rilutek (riluzole) antibiotics etc except for heart and blood pressure meds. He said his nerves system is weak and cant take the meds its just making it worse for him so we have stopped everything as he wants it to naturally heel them.
To date. My father is going to see him 3 times a week for the last 7 weeks, My fathers saliva has become very controlled, his face features are now 80-90% normal his chocking has gone down maybe once in 2 days, but very mild ones, he has stared to swallow better, breathing problems have gone down to 5 mins once in five days, I think he has gained some weight as well. Speech has had little effect I think that’s my fathers fault as he doesn’t do the exercise given by the doc enough, we have to push him a lot to do it,
Best part is he feels better and confident.
This whole thing I wrote is that there is hope and we should try what ever possible means we have there might be something that can work for our loved ones.
Please don’t mind my English I am not so good at it,
I wish for all to get well just be positive, If God closes one door, He also opens hundreds of other doors for us.
Take care all, will keep you updated.