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tajmom

Distinguished member
Joined
Apr 4, 2009
Messages
138
Reason
PALS
Diagnosis
09/2008
Country
US
State
VA
City
Fairfax
If you haven't already seen this alert, action is needed ASAP to help secure funding for the ALS registry.

Help Increase Funding for the National ALS RegistryShare
Today at 4:26pm
We need your help TODAY to increase funding for the National ALS Registry. U.S. Representatives Eliot Engel (D-NY) and Lee Terry (R-NE) are circulating a letter requesting the House Appropriations Committee provide $10 million in funding for the Registry next year. We urge you to contact your Representatives today to request that they sign onto this critical letter and support their constituents in the fight for a treatment and cure for Lou Gehrig's Disease. The text of the Engel-Terry "Dear Colleague" letter is available by clicking here.

Representatives Engel and Terry have set a deadline of March 18, 2010 for signing onto the letter. So please contact your Representative TODAY! A sample letter you can email to your Representative is available in the Advocacy Action Center of our website.

While Congress has supported the Registry in the past, we cannot assume the funding will continue. That's because there are many other programs competing for scarce dollars and the current economic and partisan climate present additional challenges to securing continued funding for the Registry. Therefore, it is vital that you contact Congress TODAY. And tell your family, friends, and colleagues to do the same. Your outreach can help ensure that we can realize the goals of the ALS Registry - to help identify what causes ALS, how it can be treated or even prevented from occurring in the first place.

Click here to read the latest news on the implementation of the National ALS Registry.

If you have any questions or would like assistance reaching out to your Representative, please contact us at [email protected] or toll-free at 1-877-444-ALSA.
 
The link to the "Dear Collegue" doesn't work... I will send this out. I am Canadian, but I have lots of US followers.
 
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