Last Chance!
There may be a vote as early as today and if it fails we're done. We will have to start from scratch next year. We don't have the time to wait.
The ALS Registry Act will:
IN GENERAL- Not later than 1 year after the receipt of the report described in subsection (b)(2)(A), the Secretary, acting through the Director of the Centers for Disease Control and Prevention and in consultation with, shall--
`(A) develop a national voluntary health organization with experience serving the population of individuals withsystem to collect data on amyotrophic lateral sclerosis (referred to in this section as `ALS'), shall--`(A) develop a system to collect data on ALS and other motor neuron disorders that can be confused with ALS, misdiagnosed as ALS, and in some cases progress to ALS, including information with respect to the incidence and prevalence of the disease in the United States; and
`(B) establish a national registry for the collection and storage of such data to includedevelop a population-based registry of cases in the United States of ALS and other motor neuron disorders that can be confused with ALS, misdiagnosed as ALS, and in some cases progress to ALS.
If you haven't emailed your senators do so now. The letters are prewritten so all it takes is filling in your information and clicking Send. There is no more time to wait its now or never.