aguilar89
New member
- Joined
- Feb 20, 2023
- Messages
- 2
- Reason
- Learn about ALS
- Diagnosis
- 00/0000
- Country
- US
- State
- AR
Before I start, thank you so much for reading.
I'm 33f and I have some terrifying symptoms. Doctors don't take me seriously the second that they see that I have C-PTSD from so much trauma that I've endured. To the point, though:
I have widespread twitching/hard spasms.
Trouble swallowing and one side of my tongue is larger (doctors just say it's an irritation but it's been there for a year, worried about atrophy and have slow rolling twitches on smaller side)
I feel like I slur my words (but everyone says I sound fine)
My neck is stiff and arms feel weak. I can literally feel my muscles tightening as it happens. My arms give out fast.
Sometimes my left leg feels heavy and like I'm dragging it but my husband says it isn't dragging.
My beautiful aunt was diagnosed with ALS 7 years ago. I feel awful for even being here asking this question, but I have 4 kids and terrified of leaving them as they're all young. I just want answers but the two PCPs around here that I have seen both won't give me a neurology referral as they say they don't see the need and everything is anxiety.
It's just hard to chalk it up to that. Especially when it's symptoms you can see like my tongue and the twitches.
Could this very well be ALS? I am currently in therapy for anxiety and PTSD and about to start medication..but I just wanted to know if these are usual ALS symptoms.
I'm 33f and I have some terrifying symptoms. Doctors don't take me seriously the second that they see that I have C-PTSD from so much trauma that I've endured. To the point, though:
I have widespread twitching/hard spasms.
Trouble swallowing and one side of my tongue is larger (doctors just say it's an irritation but it's been there for a year, worried about atrophy and have slow rolling twitches on smaller side)
I feel like I slur my words (but everyone says I sound fine)
My neck is stiff and arms feel weak. I can literally feel my muscles tightening as it happens. My arms give out fast.
Sometimes my left leg feels heavy and like I'm dragging it but my husband says it isn't dragging.
My beautiful aunt was diagnosed with ALS 7 years ago. I feel awful for even being here asking this question, but I have 4 kids and terrified of leaving them as they're all young. I just want answers but the two PCPs around here that I have seen both won't give me a neurology referral as they say they don't see the need and everything is anxiety.
It's just hard to chalk it up to that. Especially when it's symptoms you can see like my tongue and the twitches.
Could this very well be ALS? I am currently in therapy for anxiety and PTSD and about to start medication..but I just wanted to know if these are usual ALS symptoms.