mrpet
Member
- Joined
- Dec 8, 2015
- Messages
- 23
- Reason
- Learn about ALS
- Country
- US
- State
- Oregon
- City
- Portland
Fascs started in late Nov 2015. Had 4 EMGs by start of month 5, all were normal (apart from fascs).
Fascs continued, and at month 8 I went for the first time to the Sydney Brain and Mind Centre, probably Australias leading research centre in the field. There I had an ultrasound (normal nerves and muscles), transcranial magnetic stimulation (normal sici score of 19 and 20), normal clinical exam (no weakness or atrophy, non pathologically brisk symmetrical reflexes). My (now fifth) EMG detected widespread fascs (lower limb > upper limb), one 'focal fibrillation potential' in right thigh, and occasional doublet fascs in lower limbs. No other abnormalities on emg.
I was told very clearly I had no (zero) features to suggest mnd, which surprised me given the EMG results. I was told I have classic presentation of peripheral nerve hyperexcitability (PNH).
Is anyone else surprised that I can be given such a clear categorical all-clear from als notwithstanding the EMG results?
Thanks.
Fascs continued, and at month 8 I went for the first time to the Sydney Brain and Mind Centre, probably Australias leading research centre in the field. There I had an ultrasound (normal nerves and muscles), transcranial magnetic stimulation (normal sici score of 19 and 20), normal clinical exam (no weakness or atrophy, non pathologically brisk symmetrical reflexes). My (now fifth) EMG detected widespread fascs (lower limb > upper limb), one 'focal fibrillation potential' in right thigh, and occasional doublet fascs in lower limbs. No other abnormalities on emg.
I was told very clearly I had no (zero) features to suggest mnd, which surprised me given the EMG results. I was told I have classic presentation of peripheral nerve hyperexcitability (PNH).
Is anyone else surprised that I can be given such a clear categorical all-clear from als notwithstanding the EMG results?
Thanks.
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