worriedMan73
New member
- Joined
- Aug 11, 2022
- Messages
- 4
- Reason
- Learn about ALS
- Diagnosis
- 00/0000
- Country
- UK
A warm hello from the UK
I've read all the guidance on posting here, and indeed its such a privilege this space has been setup for people with questions and worries as well as people who are here because they have to be - i'll donate to its upkeep without hesitation.
A recent EMG and googling brought me here, as I suspect many others, and while I await an appointment for where to go next, I cannot help but worry about what it might mean.
Start of 2022 - I'd been suffering from tremors - because of their sudden onset on both sides it was first thought of as a stroke - but then diagnosed as essential, but then changed to "a strange type" (Neuro words not mine!) of physiological tremor, especially in the upper limbs - basically if i lean against anything that limb shakes, not like pulling a weight shake, like a proper shake from just the slightest of effort - and from that, plus a change in reflexes, and weakened grip, an EMG was recommended -
In the long wait until then, i developed what i call slowness in my left arm and a dull sensation as well as stiffness in almost any muscle used.
Physical exercise became a thing of the past pretty quickly and so I lost most of what drove me, the social aspect, the gadgets, everything became insignificant until I could find out what it was.
As well as the tremors I started to to react to things I see or dream, like if someone kicks a ball on TV, i want to do it, or i daydream about something , my hand might react to it as if it was real.
6 weeks ago I started with fasciculations in the calves and sides of my hands - with my hand "pads" looking wrinkly and thin.
2 weeks ago the EMG was done and I've just got a copy - having no idea what its meaning, but searching the terminology brought up ALS
so now i'm totally scared and panicked about it as I'm sure many reading this will either know or have seen on this forum.
The EMG conclusion stated:
"chronic denervation seen in his limb muscles cannot be altogether ignored especially, if there is no accountable pathology on MRI of his lumbosacral and cervical spine"
I have already had brain, cervical and thoracic MRI's showing nothing.
I can but wait for the Neurology report.
I've read all the guidance on posting here, and indeed its such a privilege this space has been setup for people with questions and worries as well as people who are here because they have to be - i'll donate to its upkeep without hesitation.
A recent EMG and googling brought me here, as I suspect many others, and while I await an appointment for where to go next, I cannot help but worry about what it might mean.
Start of 2022 - I'd been suffering from tremors - because of their sudden onset on both sides it was first thought of as a stroke - but then diagnosed as essential, but then changed to "a strange type" (Neuro words not mine!) of physiological tremor, especially in the upper limbs - basically if i lean against anything that limb shakes, not like pulling a weight shake, like a proper shake from just the slightest of effort - and from that, plus a change in reflexes, and weakened grip, an EMG was recommended -
In the long wait until then, i developed what i call slowness in my left arm and a dull sensation as well as stiffness in almost any muscle used.
Physical exercise became a thing of the past pretty quickly and so I lost most of what drove me, the social aspect, the gadgets, everything became insignificant until I could find out what it was.
As well as the tremors I started to to react to things I see or dream, like if someone kicks a ball on TV, i want to do it, or i daydream about something , my hand might react to it as if it was real.
6 weeks ago I started with fasciculations in the calves and sides of my hands - with my hand "pads" looking wrinkly and thin.
2 weeks ago the EMG was done and I've just got a copy - having no idea what its meaning, but searching the terminology brought up ALS
so now i'm totally scared and panicked about it as I'm sure many reading this will either know or have seen on this forum.
The EMG conclusion stated:
"chronic denervation seen in his limb muscles cannot be altogether ignored especially, if there is no accountable pathology on MRI of his lumbosacral and cervical spine"
I have already had brain, cervical and thoracic MRI's showing nothing.
I can but wait for the Neurology report.