Bandolovich
New member
- Joined
- Apr 26, 2020
- Messages
- 2
- Reason
- Learn about ALS
- Diagnosis
- 00/0000
- Country
- IT
- State
- NY
- City
- Milan
Hi everyone.
New to the forum.
I feel somehow disrespectful to write about an hypothesis in a forum with so many people already suffering and struggling. I do hope not to be bothering for nothing.
Writing from Italy and only 30 ys old. No family history of als. But 2 severe diseases out of 4 close family members (cancer).
My story does not much fit the typical onset: I had 2 episodes of 3 days long tiny face spasms in the last 5 years. No big deal. Didn't even bother to be checked by my gp back then. They simply passed.
2 months ago, face spasms are back. Again, i think, no big deal. After 2 weeks, It does not go away and slowly it extends. It become continuous. In a few days, visibile fasciculation (i am not talking about sporadic little jumps) come up pretty much everywhere in my body including hands palms, feet, back, legs, lips . I am not talking of one shot, i am talking about worms under mi feet 24hs. Done an urgent brain mri, which come out negative except for an artery being close to the right 7th nerve without really affecting it. That does not seem like a reason to justify face spasm, my neurologist said. Neurologist noted bilateral hyperreflexia and fasciculations. Nothing else. Force is here, but lost 12 kgs in a year with no diet and no sport. Fasciculation continues and at night i feel my hands and legs shaking inside. It s quite difficult to explain the feeling. Never had it in my whole life.
Done my first legs and arms emg, maybe too early from the symptoms onset, cause they said on the face it could be hemifacial spasm (even if the nerve is just barely touched) . Emg was performed on just a few muscles and came out ok. I need to repeat this in 3 months though. Feeling weaker and weaker in hands and legs. Done tons of blood test. All ok. Cpk are just fine.
I really do not what s coming. I am just 30 ys old, getting married soon.
I apologize for my English and my spelling mistakes.
Thank you all
New to the forum.
I feel somehow disrespectful to write about an hypothesis in a forum with so many people already suffering and struggling. I do hope not to be bothering for nothing.
Writing from Italy and only 30 ys old. No family history of als. But 2 severe diseases out of 4 close family members (cancer).
My story does not much fit the typical onset: I had 2 episodes of 3 days long tiny face spasms in the last 5 years. No big deal. Didn't even bother to be checked by my gp back then. They simply passed.
2 months ago, face spasms are back. Again, i think, no big deal. After 2 weeks, It does not go away and slowly it extends. It become continuous. In a few days, visibile fasciculation (i am not talking about sporadic little jumps) come up pretty much everywhere in my body including hands palms, feet, back, legs, lips . I am not talking of one shot, i am talking about worms under mi feet 24hs. Done an urgent brain mri, which come out negative except for an artery being close to the right 7th nerve without really affecting it. That does not seem like a reason to justify face spasm, my neurologist said. Neurologist noted bilateral hyperreflexia and fasciculations. Nothing else. Force is here, but lost 12 kgs in a year with no diet and no sport. Fasciculation continues and at night i feel my hands and legs shaking inside. It s quite difficult to explain the feeling. Never had it in my whole life.
Done my first legs and arms emg, maybe too early from the symptoms onset, cause they said on the face it could be hemifacial spasm (even if the nerve is just barely touched) . Emg was performed on just a few muscles and came out ok. I need to repeat this in 3 months though. Feeling weaker and weaker in hands and legs. Done tons of blood test. All ok. Cpk are just fine.
I really do not what s coming. I am just 30 ys old, getting married soon.
I apologize for my English and my spelling mistakes.
Thank you all
