chris_uk
Distinguished member
- Joined
- Aug 30, 2008
- Messages
- 111
- Reason
- Other
- Diagnosis
- 00/0000
- Country
- UK
- State
- CL
- City
- Stockton-On-Tees
Hey All
Been a while since i posted on here and wanted to give an update and not be one of those people who just vanish after getting great help from everyone on here. As most of you will know i have really bad twitching in my calfs that go non stop and about 200+ a minute...anyways i went for a 6 monthly check up a few weeks a go with my Neuro and he did the nerve speed test first. Last time they were slow but this time they were much much better.
He said he has already ruled out ALS after last time and after doing a clinical on me he decided there was no need to do another EMG. He told me that he does not want to see me again and sent me on my way.
I wanted to thank everyone on here who for the past year have been amazing, you people have really helped me through this and what is even more amazing is that many of the people who have helped me actually suffer from this horrible disease and yet STILL found time to help me out, i just cant get my head round that..i am totally gob smaked that people like you can be this kind.
BART........the reason i have put you in the title is that me and you have so many of the same symptoms and i really truly believe that your going to be fine, yes i have no medical facts to back this up but if you twitch as bad as me and you say you do then form what i have learnt over the past year there is no way you would have EVER got a clean EMG if it was nasty.
I have been there mate, you dont believe what people tell you (Wright will back me up on this) i was obsessed i had ALS and no one could convince me i hadnt.
I know you say you Neuro has gave you suspected ALS, are you sure? or is this what you have convinced yourself he said...that might sound harsh but i dont mean it this way, not at all, your a friend and i am only telling you what i did when i was in your position.
anyways again a big thank you to all of you
Chris
Been a while since i posted on here and wanted to give an update and not be one of those people who just vanish after getting great help from everyone on here. As most of you will know i have really bad twitching in my calfs that go non stop and about 200+ a minute...anyways i went for a 6 monthly check up a few weeks a go with my Neuro and he did the nerve speed test first. Last time they were slow but this time they were much much better.
He said he has already ruled out ALS after last time and after doing a clinical on me he decided there was no need to do another EMG. He told me that he does not want to see me again and sent me on my way.
I wanted to thank everyone on here who for the past year have been amazing, you people have really helped me through this and what is even more amazing is that many of the people who have helped me actually suffer from this horrible disease and yet STILL found time to help me out, i just cant get my head round that..i am totally gob smaked that people like you can be this kind.
BART........the reason i have put you in the title is that me and you have so many of the same symptoms and i really truly believe that your going to be fine, yes i have no medical facts to back this up but if you twitch as bad as me and you say you do then form what i have learnt over the past year there is no way you would have EVER got a clean EMG if it was nasty.
I have been there mate, you dont believe what people tell you (Wright will back me up on this) i was obsessed i had ALS and no one could convince me i hadnt.
I know you say you Neuro has gave you suspected ALS, are you sure? or is this what you have convinced yourself he said...that might sound harsh but i dont mean it this way, not at all, your a friend and i am only telling you what i did when i was in your position.
anyways again a big thank you to all of you
Chris