Babycakes
Active member
- Joined
- Mar 24, 2017
- Messages
- 59
- Reason
- DX MND
- Diagnosis
- 04/2017
- Country
- US
- State
- CA
- City
- Pacifica
Just thought I'd say hi.
I have MND and have been trying IVIG for the past 8-9 months. We just stopped it....9 months ago I had symptoms/EMG changes in only my right arm...now I have some subtle changes in my back and left hand (although I can't tell that there are any changes).
I'm still working, but a bit less. I like my job, and its a space where I can pretend nothing is wrong...that's really nice.
No clue how fast or what will happen tomorrow, but that's life.
I'm grateful for you all sharing, it helps to read sometimes.
Kim
I have MND and have been trying IVIG for the past 8-9 months. We just stopped it....9 months ago I had symptoms/EMG changes in only my right arm...now I have some subtle changes in my back and left hand (although I can't tell that there are any changes).
I'm still working, but a bit less. I like my job, and its a space where I can pretend nothing is wrong...that's really nice.
No clue how fast or what will happen tomorrow, but that's life.
I'm grateful for you all sharing, it helps to read sometimes.
Kim