wesker17
Member
- Joined
- Sep 6, 2014
- Messages
- 18
- Reason
- Learn about ALS
- Country
- US
- State
- OR
- City
- Eugene
Hello everyone and thank you for your time. It's been about 6 months since I first started experiencing odd symptoms and i'd like to share them with you because i'm officially worried that I might have a MND like ALS.
I'm a 32 year old white male in good health. In the beginning(6 mos ago), I would be awakened at night several times thinking that I had to urinate and nothing would be there. It was not an urgency to pee, but the feeling that my bladder is nearing full and needs to be relieved. This got progressively worse quickly with me basically needing a urinal next to the bed because walking up and down the hallway 20 times a night to the bathroom was wearing on the family members trying to sleep; this continues to get more frequent. At first I thought I had diabetes and so I was tested which was negative. Soon after needing a urinal, the twitching began. Nonstop in my legs mainly right calf in the same spot that have not stopped as I write this; there has been some slight variation in the location of the twitching in my legs but mostly the twitching has been in the same spots on both legs. Around the same time I realized the twitching wasn't going to pass, I had started getting weakness in my left hand. My hand would get fatigued very quickly after doing light things like driving to the store or typing an email. I began to get very concerned especially when the spot that was twitching nonstop in my calf balled itself into a cramp one night that lasted over 24 hours. No matter what I did I could not get the muscle to relax.
I didn't think it could get any worse until a couple nights ago out of nowhere I felt this overwhelming tiredness in my tongue. I couldn't speak another word until I rested it. This has made it to where I need to choose my words wisely now because I will get fatigued in speaking very quickly. This is about the time I heard about ALS and began reading. I've taken the time to read the stickies here as well as watch 'The ABC's of ALS' and if I wasn't fearful before, I certainly am now because is seems like my symptoms line up perfectly with an MND. Especially when the ABC's mentioned false urgency to urinate, fasciculations, weakness, among others.
I read the stickies and found the information very helpful and informative however, I now feel compelled to consult this community if you all would be so kind as to weigh in on my symptoms. I've read in several places here that the general consensus is that twitching happens on muscles dying and there is usually a weakness or atrophy before twitching occurs; but i've also read a couple stories mentioning twitching as the first symptom. I realize that this isn't a replacement for medical advice. Help!
I'm a 32 year old white male in good health. In the beginning(6 mos ago), I would be awakened at night several times thinking that I had to urinate and nothing would be there. It was not an urgency to pee, but the feeling that my bladder is nearing full and needs to be relieved. This got progressively worse quickly with me basically needing a urinal next to the bed because walking up and down the hallway 20 times a night to the bathroom was wearing on the family members trying to sleep; this continues to get more frequent. At first I thought I had diabetes and so I was tested which was negative. Soon after needing a urinal, the twitching began. Nonstop in my legs mainly right calf in the same spot that have not stopped as I write this; there has been some slight variation in the location of the twitching in my legs but mostly the twitching has been in the same spots on both legs. Around the same time I realized the twitching wasn't going to pass, I had started getting weakness in my left hand. My hand would get fatigued very quickly after doing light things like driving to the store or typing an email. I began to get very concerned especially when the spot that was twitching nonstop in my calf balled itself into a cramp one night that lasted over 24 hours. No matter what I did I could not get the muscle to relax.
I didn't think it could get any worse until a couple nights ago out of nowhere I felt this overwhelming tiredness in my tongue. I couldn't speak another word until I rested it. This has made it to where I need to choose my words wisely now because I will get fatigued in speaking very quickly. This is about the time I heard about ALS and began reading. I've taken the time to read the stickies here as well as watch 'The ABC's of ALS' and if I wasn't fearful before, I certainly am now because is seems like my symptoms line up perfectly with an MND. Especially when the ABC's mentioned false urgency to urinate, fasciculations, weakness, among others.
I read the stickies and found the information very helpful and informative however, I now feel compelled to consult this community if you all would be so kind as to weigh in on my symptoms. I've read in several places here that the general consensus is that twitching happens on muscles dying and there is usually a weakness or atrophy before twitching occurs; but i've also read a couple stories mentioning twitching as the first symptom. I realize that this isn't a replacement for medical advice. Help!