- Joined
- May 7, 2017
- Messages
- 1,884
- Reason
- Lost a loved one
- Diagnosis
- 05/2017
- Country
- CA
- State
- AB
- City
- CALGARY
I apologise for jumping on the PALS forum, but I wanted only PALS thoughts on my question. This is because only you know how you feel, and what it feels like when you have compromised breathing.
My PALS and I live in Canada but also own a house in Palm Desert. My PALS has been quite adamant about going to PD for the winter regardless of pandemic and poor breathing. Last June, my husband's SNIF test was 80, by November it was 60, by this June it was 41, and my August it was 30. He is now sufficiently supported by Bipap and trilogy, and we will go back to the clinic for another test on the 28th.
So, my question is, is it wise to bring him to the desert for 4 months (we will be flying there)? The positives about going there is that it's a much lower altitude (we currently live at 4400 feet above sea level), and it will be warm, whereas here it will be brutally cold for the next several months and he'llbe stuck inside.
The clinic is not at all in support of what we are doing, only because of the pandemic, not so much because of ALS. However, they have supplied us with 2 kinds of strong antibiotics, back up masks, hoses, batteries etc. for the machines.
I have to say I'm terribly worried about him, but he said if he goes there, gets covid and doesn't make it, he'll be happy that at least we went to our little house in the desert. We also have full medical coverage for the first 60 days.
Thoughts?
Thanks for letting me jump on your sub-forum.
My PALS and I live in Canada but also own a house in Palm Desert. My PALS has been quite adamant about going to PD for the winter regardless of pandemic and poor breathing. Last June, my husband's SNIF test was 80, by November it was 60, by this June it was 41, and my August it was 30. He is now sufficiently supported by Bipap and trilogy, and we will go back to the clinic for another test on the 28th.
So, my question is, is it wise to bring him to the desert for 4 months (we will be flying there)? The positives about going there is that it's a much lower altitude (we currently live at 4400 feet above sea level), and it will be warm, whereas here it will be brutally cold for the next several months and he'llbe stuck inside.
The clinic is not at all in support of what we are doing, only because of the pandemic, not so much because of ALS. However, they have supplied us with 2 kinds of strong antibiotics, back up masks, hoses, batteries etc. for the machines.
I have to say I'm terribly worried about him, but he said if he goes there, gets covid and doesn't make it, he'll be happy that at least we went to our little house in the desert. We also have full medical coverage for the first 60 days.
Thoughts?
Thanks for letting me jump on your sub-forum.
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