A question about bulbar onset.

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Zephyr

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My husband has been slurring his words, coughing, and choking. The speech he noticed in July, I didn't notice it until October. It is not so bad in the morning. He has no weakness in any limbs, just face throat, and mouth. No muscle twitching anywhere. Does bulbar eventually spread to the limbs? Or does it just stay put? He is scheduled to go to U C Davis in two weeks to see a neurologist, so no dx and there are still some other things it could be and hope it is actually. I hope I haven't done anything wrong posting here.
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lgelb

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This is the right place, no worries, Zephyr.

Bulbar-onset ALS, if that's what it is, does eventually "spread," but there are related diseases, such as isolated bulbar palsy, and pseudobulbar palsy, that stay put for longer or forever. And there are other possibilities that are outside this group, as you have heard.

Everyone here joins you in hoping it's "something else." You might want to see the sticky on "Getting a Diagnosis."

Best,
Laurie
 
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