• Memoriam wall
    • We've created a memoriam wall to remember our friends
    • If you know someone that battled ALS, please add them here
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Pepper

Active member
Joined
Dec 5, 2010
Messages
95
Reason
CALS
Country
US
State
TX
My husband passed away yesterday morning. His condition plateau for months. He was fairly happy and was still able to walk though slowly and carefully. Two weeks ago, he started losing his speech almost completely. A week later, he started waking up with breathing difficulty. He would be all right during the day. Then his neck muscle failed. That really disturbed him. He used his thumb and tried to lift his head up. His hands had some strength in them still. Two days before he passed away, his breathing became painfully labored. He hated the bipap and oxygen machine, and tolerated them only in extreme need. His last night on earth, he removed the bipap mask every time I put it on him. He rejected the oxygen machine and stopped cooperating with removal of mucus deeper into his mouth. He let me suction those around the front portion of his teeth, clamming his teeth shut when I tried to go in deeper. I woke up several times to check on him. At 11 pm I helped him to the bathroom and back. He was very unsteady on his feet. I looked over shortly after I got him into bed and he was sleeping. Good, I thought, falling asleep myself. At 1 am, I woke up and it was very quiet. Too quiet. I feared the worst. I looked at his chest closely, no movement. He passed on in his sleep. It is a merciful way to go. At the same time I miss him. The house feels so empty. I kept thinking he is in the bedroom and knew he is not. To the end, he remained patient and sweet, suffering patiently and apart from a few dementia episode never gave me any trouble. I thanked him for it and thank God for it.
 

cukita99

Distinguished member
Joined
Jun 12, 2007
Messages
361
Reason
PALS
Country
US
State
tx
so sorry for ur loss thats the way i want to go.
 

John1

Very helpful member
Joined
Feb 25, 2006
Messages
1,028
Diagnosis
10/2000
Country
CA
State
NL
Pepper, I am very sorry for the loss of your husband. I am glad he went peacefully. May you too find peace.
 

Jellycat

Distinguished member
Joined
Jul 3, 2010
Messages
443
Reason
Lost a loved one
Country
IRL
State
Dublin
Dear Pepper, I am so very sorry for the loss of your husband. His going sounds as you say merciful. Peace to you. Avril
 

Saramy

New member
Joined
Mar 27, 2011
Messages
1
Reason
PALS
Diagnosis
12/2010
Country
US
State
NY
dear pepper, deepest condolences on the loss of your beloved husband. blessings to you - wishing peace be in your heart..
 

hulala

New member
Joined
Jul 19, 2010
Messages
1
Reason
PALS
Country
US
State
Illinois
Hi Pepper, I am so sorry to hear of your loss. My father, who was diagnosed the summer of 2009, recently died on March 28th. My family and I are still numb from the last 2 years. I hope you find strength in family and friends, my condolences to you.

Best,
Laura
 

HelenL

Very helpful member
Joined
Dec 17, 2010
Messages
1,583
Reason
PALS
Country
US
State
MA
Pepper, I'm so sorry to hear of your loss, and hope you find peace in that he seemed to go peacefully. And that he was ready to go. My sympathies to you and your family.
Helen
 

BarryG

Extremely helpful member
Joined
Nov 19, 2008
Messages
2,981
Diagnosis
02/2008
Country
CA
State
Alberta
Pepper, I'm sorry to hear about your husband. Please accept my condolences to you and your family.
Barry
 

abbas child

Very helpful member
Joined
Feb 29, 2008
Messages
2,159
Reason
PALS
Diagnosis
07/2007
Country
US
State
Maryland
Dear Pepper,

You have my deepest sympathy. Your husband was so blessed to have your care, and his end sounds peaceful, as though he had decided it was time to go. What a wonderful thing it is that he was so sweet and easy.

Hugs,
Ann
 

Beach Bum

Distinguished member
Joined
Oct 5, 2010
Messages
142
Diagnosis
08/2010
Country
US
State
SC
So sorry for your loss,
COULD SOMEBODY COME UP WITH A CURE FOR ALS------PLEASE!
 

LornaDoone

Distinguished member
Joined
Apr 16, 2010
Messages
211
Reason
Loved one DX
Diagnosis
09/2007
Country
CA
State
BC
I am sorry for your loss Pepper. Lots of love to you.
 

laurel

Very helpful member
Joined
Jul 19, 2007
Messages
1,431
Reason
Other
Country
CA
State
Western Canada
I am sorry Pepper. Please accept my condolences. I am glad that he went peacefully in his sleep. Blessings to you and your family.
Laurel
 

Bhappy

Distinguished member
Joined
Apr 6, 2011
Messages
169
Reason
PALS
Diagnosis
02/2011
Country
US
State
Illinois
Dear Pepper,
I am so sorry for your loss. My thoughts are with you.
Mary
 

trfogey

Very helpful member
Joined
Jan 31, 2008
Messages
2,017
Reason
PALS
Diagnosis
07/2007
Country
US
State
NC
So sorry for your loss, Pepper. Please accept my condolences and prayers for you and the rest of your family.
 
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