Ryanw
Member
- Joined
- Aug 22, 2012
- Messages
- 21
- Reason
- PALS
- Diagnosis
- 09/2012
- Country
- US
- State
- wa
- City
- Tacoma
Well it has been a long year, I hope this is the right spot to post this.
In February of this year I noticed that I could not lift my foot and walking started to get difficult so I went to my orthopedic surgeon to see what was up (due to the fact that I have a hip replacement in my right hip) He took MRI of my low back and hips and said nothing was wrong. He sent me to a neurologist he did EMG on my legs, they were positive for nerve damage in both legs had another MRI of my pelvis to see if I had a tumor in my pelvis, that came back clean, had all the blood work he could think of done it all came back clean. By now three months has passed I am now walking with a cane I have bad muscle wasting in my right leg and fasciculation’s all over both of my legs. My Neurologist sends to a rheumatologist and I have been through so much blood work and the only thing she has found is an elevated CPK level of 850. She thinks I may have ALS or one of its cousins, and she has now referred me to the local ALS clinic at Virginia Mason medical center, I see them on the 21st of Sepetember.
It is getting scary now I can hardly walk with a cane and drive if this keeps up I won’t be able to work for much longer and did I mention I’m only 38
In February of this year I noticed that I could not lift my foot and walking started to get difficult so I went to my orthopedic surgeon to see what was up (due to the fact that I have a hip replacement in my right hip) He took MRI of my low back and hips and said nothing was wrong. He sent me to a neurologist he did EMG on my legs, they were positive for nerve damage in both legs had another MRI of my pelvis to see if I had a tumor in my pelvis, that came back clean, had all the blood work he could think of done it all came back clean. By now three months has passed I am now walking with a cane I have bad muscle wasting in my right leg and fasciculation’s all over both of my legs. My Neurologist sends to a rheumatologist and I have been through so much blood work and the only thing she has found is an elevated CPK level of 850. She thinks I may have ALS or one of its cousins, and she has now referred me to the local ALS clinic at Virginia Mason medical center, I see them on the 21st of Sepetember.
It is getting scary now I can hardly walk with a cane and drive if this keeps up I won’t be able to work for much longer and did I mention I’m only 38