trfogey
Very helpful member
- Joined
- Jan 31, 2008
- Messages
- 2,043
- Reason
- PALS
- Diagnosis
- 07/2007
- Country
- US
- State
- NC
- City
- Raleigh
Tr, somebody crap in your corn flakes again? Try to be your nice helpful member please. The lady asked a question. Right or wrong. No reason to crucify her.
And, if you'll note, I answered that question before the rest of the ruckus started. Nobody's crucifying anybody here.
trfogey-save some of that anger for your congressmen. You are personally attacking me and I think it is unjustified. That is what makes people on the forum afraid to open up and share real thoughts and feelings. If you don't like what I ask then read another post--I do that all the time. If you want to respond to me again here go ahead--I won't be posting any more on this line so you can get the last jab in if you like and this post will move down the page and disapear.
I'm not angry. I'm simply expressing an opinion, just as you are doing. And that opinion is that speculation about longevity in this forum is distasteful and insensitive to those PALS and CALS who are experiencing rapid progression. It's an opinion, not a law. You don't have to agree with it and I expect that you don't.
Had you asked this question in the General ALS Discussion forum, I'd have been inclined to let it pass. It's a theoretical question, like many others we discuss on that part of the board.
But, as I stated before, we have had a number of PALS who have progressed much more rapidly than average lately, at least from the stories told by their PALS. All I'm asking for is a bit of discretion and a bit of compassion for those folks in the subjects we choose to discuss here in this part of the forum, where those CALS come to get what they need to make it through the next day, not to have the fact that their PALS is progressing faster than usual thrown in their face.
You are of course, entitled to disagree.
And, as you should have noted, I did answer your question. I think I'm the only one who even bothered to try, so you're welcome for that.