Momofboys
New member
- Joined
- May 2, 2019
- Messages
- 2
- Reason
- Learn about ALS
- Country
- US
- State
- Mi
- City
- Grand rapids
I am not sure if I should share my concern. I do not want to diminish the struggles people with ALS experiences. But I want to share my thoughts with someone. I apologize in advance as I am not as well spoken as most people here.
I am currently awaiting an EMG and a NCS. Thinking something could be wrong feels foreign to me.
My pcp suggested I see an ENT and neurologist. Due to muscle cramps, caused by certain movements and positions for several years. (Tried PT with no improvement)
Starting this winter I began having muscle twitching in my right foot, which is now constant. She pointed out my foot twitches non stop when I sit and it dangles. I hadn’t noticed.
While speaking with my doc she asked a lot of questions. She pointed out some issues I’ve experienced
could be related. I have experienced random knee buckling, constant twitching in my leg, occasionally twitching in my tongue and jaw. Sometimes my hand jerks or let’s go of things at random, I also have choked on my own saliva at random. I have zero pain or tingling.
I was tested for vitamin deficiencies, thyroid problems, electrolyte imbalance, and general blood work. Everything looked fine. At that point my doc suggested the issue maybe neurological. She said it was beyond her experience. All that came to her mind was ALS and MS.
I am not panicking as she is a PCP and this seems beyond her. But it seems clear there is a very real problem.
Saw the ENT and who performed a scope, found nothing out of the norm. ENT also suggested I see neurologist.
Does this sound familiar? I figured so many people have posted concerns on this forum you guys have seen everything.
FYI I refuse to go down a google black hole. I thought perhaps a knowledgeable forum would help me understand the road that may lay ahead.
Thanks for reading this.
I am currently awaiting an EMG and a NCS. Thinking something could be wrong feels foreign to me.
My pcp suggested I see an ENT and neurologist. Due to muscle cramps, caused by certain movements and positions for several years. (Tried PT with no improvement)
Starting this winter I began having muscle twitching in my right foot, which is now constant. She pointed out my foot twitches non stop when I sit and it dangles. I hadn’t noticed.
While speaking with my doc she asked a lot of questions. She pointed out some issues I’ve experienced
could be related. I have experienced random knee buckling, constant twitching in my leg, occasionally twitching in my tongue and jaw. Sometimes my hand jerks or let’s go of things at random, I also have choked on my own saliva at random. I have zero pain or tingling.
I was tested for vitamin deficiencies, thyroid problems, electrolyte imbalance, and general blood work. Everything looked fine. At that point my doc suggested the issue maybe neurological. She said it was beyond her experience. All that came to her mind was ALS and MS.
I am not panicking as she is a PCP and this seems beyond her. But it seems clear there is a very real problem.
Saw the ENT and who performed a scope, found nothing out of the norm. ENT also suggested I see neurologist.
Does this sound familiar? I figured so many people have posted concerns on this forum you guys have seen everything.
FYI I refuse to go down a google black hole. I thought perhaps a knowledgeable forum would help me understand the road that may lay ahead.
Thanks for reading this.
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