Dan11092
Member
- Joined
- Mar 10, 2017
- Messages
- 13
- Reason
- Learn about ALS
- Country
- US
- State
- Ohio
- City
- Cleveland
Good morning, I have read the thread and expect to get a lot of its not ALS responses but I just want a little advice. I'm 25 years old. This past year has been pretty hectic for me health wise. I suffer from anxiety and I am a hypochondriac and working on getting put on meds. It all started a few months ago when I developed a small case of shingles on my abdomen I freaked out because I never heard any of my friends/people my age getting shingles. I started questoning if I had an underlying illness that caused it besides stress. Turned out I have hashimotos of the thyroid (which I am currently on levothyroxine). From there I am real sensitive to cold, tingling in my hands,arms,and legs occasionally, and a slight tremor in my hands. So with me going on the Internet per usual I came across MS and started freaking out. I went to see a neuro from the Cleveland clinic and he told me MS was not impossible but almost on the back of his list he told me I could have side effects from the thyroid drug/thyroid. He told me to get on an anxiety pill and see him in a year. Basically brushed me off by being nice. Couple weeks went by and I started feelings like I had a spiderweb sensation on my ear but nothing was there. Also I developed a constant twitch you could see underneath the skin on my deltoid. I always stay hydrated so I know it wasn't that and started freaking out when I saw ALS/twitches. So I went and got a 2nd opinion from another neuro through the Cleveland clinic much nicer guy and more caring. I passed both neuro's exams btw. I told him about my concern with twitching and ALS and he told me he's diagnosed individuals with ALS and he doesn't think this is it, he did find my vitamin b12 was on the low side of normal and my vitamin d was low at 12. He wants me to follow back up with him in 3 months and doesn't feel an mri or emg is needed cause I have no atrophy or weakness, but I keep trying to push an emg to ease my mind. My current symptoms as of today are I wake up in the am with a slight headache and feel shaky that goes away when I am actually up, tingling here and there in legs and hands, the twitching in the deltoid finally went away after 5 days but now I get it in my legs,arms,abdomen,and right temple the temple is more effected, muscles seem tight in my arms frequently. I just see all these post with twitching, headaches in the morning, muscle tightness. I guess as far as advice I just want to know does any of this sound like it could be ALS in the works, should I stop nagging the neuro and just let it be and stop pushing for an emg? Please don't judge me.