ceegee
Member
- Joined
- Aug 26, 2008
- Messages
- 20
- Reason
- Learn about ALS
- Country
- US
- State
- nj
- City
- deptford
My mom has been diagnosed for about 6 months now. She is barely moving her legs and sits in a recliner 24 hours a day. She gets up to go the bathroom in the commode next to the chair. We just ordered an eletric chair and hospital bed so she can sleep better. The disease is starting to effect her arms and hands now as well. I've noticed her voice is not as strong as it used to be. Is this a new symptom?
The one question i have is how is she going to go to the bathroom once her legs can't support her anymore? Can anyone relate or does anyone have suggestions.
What about excercise? I do range of motion excercise but does that really do anything? Also, her legs are soo stiff. She is taking 60mgs of baclophen for the stiffness. Any other meds recommendations?
she is on rilutek but i hear so many pros and cons. your thoughts? if its only prolonging your life for 2 months, is it worth it? my mom doesn't know this so i'm struggling to tell her or not. any kind words on that?
thanks for your support and this forum. it gets me through the tough times.
CeeGee
The one question i have is how is she going to go to the bathroom once her legs can't support her anymore? Can anyone relate or does anyone have suggestions.
What about excercise? I do range of motion excercise but does that really do anything? Also, her legs are soo stiff. She is taking 60mgs of baclophen for the stiffness. Any other meds recommendations?
she is on rilutek but i hear so many pros and cons. your thoughts? if its only prolonging your life for 2 months, is it worth it? my mom doesn't know this so i'm struggling to tell her or not. any kind words on that?
thanks for your support and this forum. it gets me through the tough times.
CeeGee