Micheline
Active member
- Joined
- Sep 23, 2008
- Messages
- 81
- Reason
- PALS
- Diagnosis
- 11/2008
- Country
- CA
- State
- British Columbia
- City
- Campbell River
Sorry I have not been posting lately. A few issues have come up, so I am here now. I tried searching the threads for info, but mostly got “do I have ALS section”. So here goes:
1. My arms have been getting weaker, hard to pinch, lift arms over shoulders, left hand slower than right hand. Unable to wash/dress etc.
2. My sleeping sucks, I have upped my sleeping pills to 2 per night. Still have excruciating pain most days in hip and knees. Will be asking for a hospital bed
3. My OT and Nurse want to discuss going into a facility if we do not get a grant for the porch lift. They feel I will be house bound, as far as that goes I am already house bound unless I have someone to help.
4. Went and saw the respirologist, my FVC went down to 73%. My breathing is shallow (little breaths) and I cannot blow out all the air in my lungs. I am on a puffer when needed for my coughing fits. He also said I need to quit smoking and lose weight. He wants me to decide what option for ventilation to do.
So any input or direction on 1 or more of the above I would appreciate, thank you.
1. My arms have been getting weaker, hard to pinch, lift arms over shoulders, left hand slower than right hand. Unable to wash/dress etc.
2. My sleeping sucks, I have upped my sleeping pills to 2 per night. Still have excruciating pain most days in hip and knees. Will be asking for a hospital bed
3. My OT and Nurse want to discuss going into a facility if we do not get a grant for the porch lift. They feel I will be house bound, as far as that goes I am already house bound unless I have someone to help.
4. Went and saw the respirologist, my FVC went down to 73%. My breathing is shallow (little breaths) and I cannot blow out all the air in my lungs. I am on a puffer when needed for my coughing fits. He also said I need to quit smoking and lose weight. He wants me to decide what option for ventilation to do.
So any input or direction on 1 or more of the above I would appreciate, thank you.