Fonz
New member
- Joined
- May 6, 2019
- Messages
- 7
- Reason
- Loved one DX
- Diagnosis
- 02/2018
- Country
- GE
- State
- HM
- City
- Hamburg
Dear all,
First of all, I'd like to say hi to everyone here as I am new. To be honest I have been following this forum for almost a year now and I must say it has been great help so I would like to thank everyone who have contributed to this forum.
I'd like to introduce myself in short and will try to keep my post as short as possible..I moved from Australia to Germany 2 years ago, working and living here. My parents live in Turkey.
My dad was diagnosed with ALS on Feb 2018 based on the EMG he had. He visited 3 different neurologists and got diagnosed with ALS. He was able to walk and drive last year, except he lost his balance last July and hit his head on nightstand, he almost lost his eye.
Recently he can hardly move, has drop head syndrome, can hardly lift his feet and can't use the arms especially left arm. Muscle waste is visible on both arms.He doesn't have problem with speech, however swallowing is a bit harder for him. I try to visit him as much as I can, was with him last week and made me so sad to see him like that. He can't go to bathroom without 2 people supporting him.
Since it is a complex disease and can be misunderstood, based on my father told me, i suspect there might be something else and I appreciate your inputs.
He told me last week that in the very beginning of the disease, he had itchiness on his left arm for like 3 months which he didn't tell anybody. He had so much pleasure scratching it but he knew there was something wrong. He also felt numbness on his left arm, which he thought might have indicated heart disease, got his heart checked but no problem.
Considering the disease started on his left arm and that was the first body part got affected, we have come to the conclusion that it had definitely got something to do with this. As far as I am aware itchiness and numbness are not ALS symptoms, therefore we all are a bit confused now.
He has also lots of joint pains which are not common in ALS especially while sleeping at night.
He also drags his right foot while we walk him, actually he has been dragging it for quiet some time now.
Should we visit another neurologist? It is kind of hard to find an expert in this area in Turkey but we will try.
Any advise will be highly appreciated.
Thank you all in advance
First of all, I'd like to say hi to everyone here as I am new. To be honest I have been following this forum for almost a year now and I must say it has been great help so I would like to thank everyone who have contributed to this forum.
I'd like to introduce myself in short and will try to keep my post as short as possible..I moved from Australia to Germany 2 years ago, working and living here. My parents live in Turkey.
My dad was diagnosed with ALS on Feb 2018 based on the EMG he had. He visited 3 different neurologists and got diagnosed with ALS. He was able to walk and drive last year, except he lost his balance last July and hit his head on nightstand, he almost lost his eye.
Recently he can hardly move, has drop head syndrome, can hardly lift his feet and can't use the arms especially left arm. Muscle waste is visible on both arms.He doesn't have problem with speech, however swallowing is a bit harder for him. I try to visit him as much as I can, was with him last week and made me so sad to see him like that. He can't go to bathroom without 2 people supporting him.
Since it is a complex disease and can be misunderstood, based on my father told me, i suspect there might be something else and I appreciate your inputs.
He told me last week that in the very beginning of the disease, he had itchiness on his left arm for like 3 months which he didn't tell anybody. He had so much pleasure scratching it but he knew there was something wrong. He also felt numbness on his left arm, which he thought might have indicated heart disease, got his heart checked but no problem.
Considering the disease started on his left arm and that was the first body part got affected, we have come to the conclusion that it had definitely got something to do with this. As far as I am aware itchiness and numbness are not ALS symptoms, therefore we all are a bit confused now.
He has also lots of joint pains which are not common in ALS especially while sleeping at night.
He also drags his right foot while we walk him, actually he has been dragging it for quiet some time now.
Should we visit another neurologist? It is kind of hard to find an expert in this area in Turkey but we will try.
Any advise will be highly appreciated.
Thank you all in advance
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