FirstTermMed
Member
- Joined
- Dec 6, 2011
- Messages
- 12
- Reason
- Learn about ALS
- Country
- US
- State
- MI
- City
- East Lansing
Hi everyone! I've been following the forum for several months now and find myself inspired by all the members on here =)
Now where to start, my name is Ali and I go to Medical School in the Caribbean (I know what your thinking, but yes it is legitimate, promise) and I just finished up my first term. About twelve months ago I developed a twitch in my left arm which in a few months spread to my other arm and the rest of my body save my hands and face, I was subsequently diagnosed with BFS. During that time I have had fevers, joint pain, burning in my chest, muscle pain, rashes, and most recently a lump in the back of my throat with difficulty swallowing. Being in the Medical field I naturally assumed this was auto-immune related and an ANA test came back positive 1:640. To clear my bases I've had, CT's, MRI's (have a small syrinx cavity in C-spine), EMG's and all manner of blood work.
I'm waiting on my specific antibody tests to come back, but what really worries me is the EMG I had done. It was supposed to just involve my legs, it ended up being all my limbs, with mention of sharp waves and etc. The Neuromuscular specialist after half an hour of discussion came into to the room and stated that she was very surprised by the findings, and wanted an MRI done again of my Cervical/Lumbar region, antibody blood test, and a skin biopsy. When I was walking out, they stopped me in the hallway and had me come back for more NCV tests of my forearm. This perplexed me later on, and I called 3 days later to get a copy of the report, but was informed that it hadn't been finalized yet.
The strange thing is, for a month my fasciculation's had stopped almost entirely, and after the EMG they came back with a vengeance along with all my limbs constantly going numb to the point where I can't really sleep at night. As well I've been dealing with extreme abdominal pain and a deep aching pain in my scrotum (go figure, sigh).
I have no Clinical weakness of which to speak of with no UMN signs (Babinski) or brisk reflexes. Just a bit worried about my EMG report and it's findings. I find comfort in this forum knowing that there are such amazing people with such incredible perseverance.
My symptoms have put me at a complete loss, but I'll be sure to post the results of my tests as soon as I get them. If anyone has any specific questions about my symptoms/reports please feel free to ask. Thanks for listening =)
Warm regards,
Ali
Now where to start, my name is Ali and I go to Medical School in the Caribbean (I know what your thinking, but yes it is legitimate, promise) and I just finished up my first term. About twelve months ago I developed a twitch in my left arm which in a few months spread to my other arm and the rest of my body save my hands and face, I was subsequently diagnosed with BFS. During that time I have had fevers, joint pain, burning in my chest, muscle pain, rashes, and most recently a lump in the back of my throat with difficulty swallowing. Being in the Medical field I naturally assumed this was auto-immune related and an ANA test came back positive 1:640. To clear my bases I've had, CT's, MRI's (have a small syrinx cavity in C-spine), EMG's and all manner of blood work.
I'm waiting on my specific antibody tests to come back, but what really worries me is the EMG I had done. It was supposed to just involve my legs, it ended up being all my limbs, with mention of sharp waves and etc. The Neuromuscular specialist after half an hour of discussion came into to the room and stated that she was very surprised by the findings, and wanted an MRI done again of my Cervical/Lumbar region, antibody blood test, and a skin biopsy. When I was walking out, they stopped me in the hallway and had me come back for more NCV tests of my forearm. This perplexed me later on, and I called 3 days later to get a copy of the report, but was informed that it hadn't been finalized yet.
The strange thing is, for a month my fasciculation's had stopped almost entirely, and after the EMG they came back with a vengeance along with all my limbs constantly going numb to the point where I can't really sleep at night. As well I've been dealing with extreme abdominal pain and a deep aching pain in my scrotum (go figure, sigh).
I have no Clinical weakness of which to speak of with no UMN signs (Babinski) or brisk reflexes. Just a bit worried about my EMG report and it's findings. I find comfort in this forum knowing that there are such amazing people with such incredible perseverance.
My symptoms have put me at a complete loss, but I'll be sure to post the results of my tests as soon as I get them. If anyone has any specific questions about my symptoms/reports please feel free to ask. Thanks for listening =)
Warm regards,
Ali