A couple of resources

[Nikki J]

This is about dealing with a new diagnosis Mary Holt Paolone
it might be worth a look for all

also tonight everythingals dot org has as their topic ALS palliative care. The speaker is Kate Brizzi from Mass General who did dual fellowships in neurology and palliative care. I know they record these sessions and put them on their youtube channel after if you miss tonight

 

[Tomswife]

We will be starting Palliative Care for Tom. PALS. I will look at this. Thank you.

 

[MupstateNY]

Tomswife, I look forward to hearing what you guys think of palliative care. I want to get started soon if I can just get my head above water.