KatieNBoyd
Distinguished member
- Joined
- Oct 17, 2015
- Messages
- 151
- Reason
- Lost a loved one
- Diagnosis
- 11/2015
- Country
- US
- State
- MT
- City
- Boyd
Hello, I do not want to impose myself on the group but I have a tiny request that I wanted to put out there.
My PALS, my husband was diagnosed in Oct 2015 (there were signs that began Dec of 2014) he left me Friday Dec 9, 2016. He had ALS + FTD so most of the things that have happened in the last 8 months were not of him in his right mind and I know that now.
I am going through his desk today and his computer. I am looking for something I know is not here. Jon and I were the perfect puzzle piece to each other from the first time we met ten years ago. He would leave me notes (on my car, my pillow and other places. Sometimes just a little heart drawn with his name.
Here I am without him now and I was hoping to find one last note. Something that tells me I did alright these 14 months. It is not here. It makes me sad but I know in my heart I did everything alright. I kissed him often (and he kissed me), I hugged him every time we touched.
I have found older notes that I have sent to him which makes me feel good that he kept them.
So, my small request is that you PALS leave a tiny note for your CALS that says they have done alright. That you have felt their love and understanding through this. Leave it somewhere that when the day comes they will find it and find joy to know they have done alright.
Love you all
Katie
My PALS, my husband was diagnosed in Oct 2015 (there were signs that began Dec of 2014) he left me Friday Dec 9, 2016. He had ALS + FTD so most of the things that have happened in the last 8 months were not of him in his right mind and I know that now.
I am going through his desk today and his computer. I am looking for something I know is not here. Jon and I were the perfect puzzle piece to each other from the first time we met ten years ago. He would leave me notes (on my car, my pillow and other places. Sometimes just a little heart drawn with his name.
Here I am without him now and I was hoping to find one last note. Something that tells me I did alright these 14 months. It is not here. It makes me sad but I know in my heart I did everything alright. I kissed him often (and he kissed me), I hugged him every time we touched.
I have found older notes that I have sent to him which makes me feel good that he kept them.
So, my small request is that you PALS leave a tiny note for your CALS that says they have done alright. That you have felt their love and understanding through this. Leave it somewhere that when the day comes they will find it and find joy to know they have done alright.
Love you all
Katie