Barbie
Extremely helpful member
- Joined
- Dec 29, 2007
- Messages
- 2,684
- Reason
- Lost a loved one
- Diagnosis
- 01/2007
- Country
- US
- State
- FL
- City
- orlando
Hi everyone! Today is the 9th anniversary of my sweet husband’s death from ALS. He actually lived with ALS for 9 years as well, and it is so weird to think he has been dead for as long as he suffered from this crappy disease. And then I realize it has been 18 years since he was my healthy, strong , and fun husband…
Wow. I still think of him and miss him almost every day, even though I am happily remarried. I still get teary-eyed when I see someone in a wheelchair or with obvious symptoms of ALS. Big milestones are painful—births of grandkids, weddings, tough times or great times with our kids…
Most of the really horrible stuff that he and I went through for those 9 years are blocked out of my memory thankfully. I had to let it all go or I think the pain would have taken me out. When I went back and read my old posts here I felt like I was reading someone else’s story. I got very sad and cried from the pain. I don’t want to remember—it was what it was, it was our life and we did our best. Everyday. I am proud of him and of me for those years, and now I am just proud of me for living on. I think he would be proud of me too. I have a really great life now.
This disease. It is so absolutely horrible; to the pals, the cals, the families and even friends. There really aren’t words that encompass the horror of it.
This forum saved me and kept me from losing my soul to despair. My thoughts go out to those that are still suffering, as well as those that are struggling with the loss of your loved one. Sending love and big hugs to any of my old friends who may read this.
Wow. I still think of him and miss him almost every day, even though I am happily remarried. I still get teary-eyed when I see someone in a wheelchair or with obvious symptoms of ALS. Big milestones are painful—births of grandkids, weddings, tough times or great times with our kids…
Most of the really horrible stuff that he and I went through for those 9 years are blocked out of my memory thankfully. I had to let it all go or I think the pain would have taken me out. When I went back and read my old posts here I felt like I was reading someone else’s story. I got very sad and cried from the pain. I don’t want to remember—it was what it was, it was our life and we did our best. Everyday. I am proud of him and of me for those years, and now I am just proud of me for living on. I think he would be proud of me too. I have a really great life now.
This disease. It is so absolutely horrible; to the pals, the cals, the families and even friends. There really aren’t words that encompass the horror of it.
This forum saved me and kept me from losing my soul to despair. My thoughts go out to those that are still suffering, as well as those that are struggling with the loss of your loved one. Sending love and big hugs to any of my old friends who may read this.
