Gracie
Active member
- Joined
- Oct 28, 2007
- Messages
- 63
- Diagnosis
- 09/2007
- Country
- US
- State
- PA
- City
- Altoona
Hi Everyone hope you all are doing okay.Well we had our 6 month visit with the neurologist yesterday. I was scared because after our last visit my husband showed weakness in the right hand and doc said it was muscle atrophy (which I thought couldn't be good). I told you all before that my husband had clonus and right knee babinsky, after 2 yrs he progressed to right and left feet clonus and right and left knee babinsky. His balance was getting worse and he looked to me like he was progressing daily. I have done an extreme amount of research and from my last post I told you all what I was doing trying to prevent Glutamate from MSGs and Nitric Oxcide from a unbalance of Lysine and Arginine in his food. I asked our neuro if he thought possibly this could be my husbands problem and he said there is a lot of research being done on Glutamate and Nitric Oxide and how it can kill the neurons. I told him this could be the answer for people who do not tolerate for what ever the reason (cellular makeup or dna) this chemical that preservatives accumulate in the brain and destroy. I am convinced it is a factor. I prepare everything (homemade bread, rolls, ketsup, mayonaize, ice cream, candy, cakes) and nothing goes in my husbands mouth unless I know what it is. Well he seems to be doing better. The neuro said he had 10 people diagnosed with PLS. Three have died, 6 changed to ALS and my husband has stayed the same. He seemed to be on a spiral and now he is going the other way. We have been bike riding again and he seems so much stronger. I am still detoxing him with the ionic detox foot bath and detoxing him with the herbal tea Flora Essence. This may or may not be the answer but it can't hurt and thank god we are retired because it is a lot of work. I am canning today and I am very busy but I just wanted to check in and tell you all that we are still hanging in there. The doc's have no answer and at least this is a way I can do something about it. Gracie