Rolo1973
New member
- Joined
- Jun 19, 2022
- Messages
- 9
- Reason
- PALS
- Diagnosis
- 08/2021
- Country
- US
- State
- AZ
- City
- Tucson
The most hardest thing is missing FOOD! Oh gosh! Food was my #1 drug back in the day. With ALS starting in my mouth area, I stopped being able to speak, eat and drink. Feeding tube is giving me life, and I really like shooting carbonated sodas and energy drinks just to burp. I do notice that my limbs are slowing down. Walking requires balance, so I use a walker mostly. Anything past 20 + feet, walker time. A bee really liked me the other day. He was flying towards me, my mind was telling me "move", but my muscles are like "sure, one minute please". He hit my face crawled for a couple seconds then flew off. Maybe he was just saying "Hi!, I will protect you". hahaha