sara06
Member
- Joined
- Aug 9, 2006
- Messages
- 29
- Country
- Ottawa
- State
- Michigan
- City
- Jenison
Hello everyone. I am fairly new here so most of you probably don't know much about me. My name is Sara, I'm 22 years old. I have a 3 year old daughter named Bailey. I am taking care of my mother who was diagnosed with ALS in December '05. My grandfather passed away from it in 1975, my uncle in 1980, and my great uncle in 1994. My mother's cousin was just diagnosed in January of this year...so my siblings, my cousins and I all know that we have a 50% chance of carrying the SOD-1 gene, and sadly enough, so do our children. There are 12 of us, and collectively there are 20 children. I am just looking for advice from anyone and everyone. I am completely undecided on whether or not I would like to be tested for this gene. I would just like to know what others feel about the issue, and I welcome both sides of the spectrum. I just need some outside objective points of view.
Thank you, ~Sara~
Thank you, ~Sara~