hexag0n_sun
New member
- Joined
- Jul 14, 2013
- Messages
- 5
- Reason
- Loved one DX
- Country
- CA
- State
- Ontario
- City
- Brantford
just sat here for bout 3/4 hour staring, reaching for something to type. that's the kind of day its been. my mother was diagnosed 5 weeks ago, at that time, she had no leg use at all, .
now? the minimal movement she does have is in her one good arm (little to no finger use) and her neck. last week she could talk fairly well - this week shes barely audible... my daughter can't hear or understand what shes saying. all my mom keeps saying to me as best as she can is 'i love you'
5 weeks seems so very fast compared to what i read on the internet about average
als is relentless.
i started to cry beside my mom yesterday. for the first time. she got so upset, she cried harder than i did, saying don't cry - stop. i said its ok to cry, but she kept just saying no and saying my step dads name.
i don't understand the reaction or the request - do i honor that? not cry in front of her? i guess i hadn't before then, but i feel times running out. now how do i not cry in front of her?
now? the minimal movement she does have is in her one good arm (little to no finger use) and her neck. last week she could talk fairly well - this week shes barely audible... my daughter can't hear or understand what shes saying. all my mom keeps saying to me as best as she can is 'i love you'
5 weeks seems so very fast compared to what i read on the internet about average
als is relentless.
i started to cry beside my mom yesterday. for the first time. she got so upset, she cried harder than i did, saying don't cry - stop. i said its ok to cry, but she kept just saying no and saying my step dads name.
i don't understand the reaction or the request - do i honor that? not cry in front of her? i guess i hadn't before then, but i feel times running out. now how do i not cry in front of her?