My first post as a PALS.
5 months in, navigating the crap.
My son for Mother’s Day got us a mother/son Viking cruise to Vienna. I was a musician my whole life and I’m watching my voice go and my piano ability go as my arms go first with this insidious disease. He decided to check off a bucket list item for me. I just hope in a month I can still eat drink, and more importantly, dress myself so as not to ask for help from my 37 year old son.
Trying to maintain dignity as long as possible.
We know the drill, my first husband died of ALS at age 53. Hoping to have some good conversations with my kid as he navigates having two parents with ALS.
5 months in, navigating the crap.
My son for Mother’s Day got us a mother/son Viking cruise to Vienna. I was a musician my whole life and I’m watching my voice go and my piano ability go as my arms go first with this insidious disease. He decided to check off a bucket list item for me. I just hope in a month I can still eat drink, and more importantly, dress myself so as not to ask for help from my 37 year old son.
Trying to maintain dignity as long as possible.
We know the drill, my first husband died of ALS at age 53. Hoping to have some good conversations with my kid as he navigates having two parents with ALS.