JohnHMich
Active member
- Joined
- Feb 17, 2020
- Messages
- 58
- Reason
- Lost a loved one
- Diagnosis
- 4/2020
- Country
- US
- State
- MI
- City
- Ann Arbor
We are at the point where all lifts use the Hoyer, 90% of food and all the meds are thru the gtube, she can’t operate her chair, write a check, turn pages on a paperback, or hold herself upright. I expect she will lose the ability to speak in weeks.
She has a DNR and doesn’t want a trach.
I feel like we are waiting for the first night time choking, breathing, distress situation to see how we fare.
I feel like at-home hospice doesn’t really change much in that scenario. I am still the person to call 911? And under what circumstances? What can paramedics do for an ALS patient with a DNR? What does at-home hospice do as breathing issues increase? I assume they just come once a week?
I am trying to prepare, but this is uncharted territory…
She has a DNR and doesn’t want a trach.
I feel like we are waiting for the first night time choking, breathing, distress situation to see how we fare.
I feel like at-home hospice doesn’t really change much in that scenario. I am still the person to call 911? And under what circumstances? What can paramedics do for an ALS patient with a DNR? What does at-home hospice do as breathing issues increase? I assume they just come once a week?
I am trying to prepare, but this is uncharted territory…